“The body has a way of dying:” An embodied understanding of the pursuit of medical aid in dying among terminally ill individuals

Despite extensive scholarship on clinical and ethical issues in medical aid in dying (MAID), little research has examined the lived experiences of individuals pursuing this end-of-life option. This phenomenological study aims to explore how terminally ill individuals experience the pursuit of MAID through their embodied perceptions and interpretations. Semi-structured interviews with seven participants were analyzed using an embodiment framework encompassing the physical, social, and lived body. Findings reveal that participants' physical conditions and social contexts shaped their end-of-life and aid-in-dying realities, which subsequently influenced their lived perception of dying within the context of a medically assisted process. The study concludes with a philosophical framework of embodiment for understanding assisted death as a whole-person experience, emphasizing the central role of the "lived body." Implications underscore the need for lawmakers, healthcare professionals, and researchers to consider humanistic perspectives when developing ethical and compassionate end-of-life care.

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Publication Details

Journal
Death Studies
Published
2025-12-20
DOI
https://doi.org/10.1080/07481187.2025.2603961
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
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article

“The body has a way of dying:” An embodied understanding of the pursuit of medical aid in dying among terminally ill individuals

Death Studies
Palliative Care and End-of-Life Issues
article

“The body has a way of dying:” An embodied understanding of the pursuit of medical aid in dying among terminally ill individuals

article en

Abstract

Despite extensive scholarship on clinical and ethical issues in medical aid in dying (MAID), little research has examined the lived experiences of individuals pursuing this end-of-life option. This phenomenological study aims to explore how terminally ill individuals experience the pursuit of MAID through their embodied perceptions and interpretations. Semi-structured interviews with seven participants were analyzed using an embodiment framework encompassing the physical, social, and lived body. Findings reveal that participants' physical conditions and social contexts shaped their end-of-life and aid-in-dying realities, which subsequently influenced their lived perception of dying within the context of a medically assisted process. The study concludes with a philosophical framework of embodiment for understanding assisted death as a whole-person experience, emphasizing the central role of the "lived body." Implications underscore the need for lawmakers, healthcare professionals, and researchers to consider humanistic perspectives when developing ethical and compassionate end-of-life care.

Death Studies
UCLA Medical Center (US), Republican Scientific and Practical Center of Cardiology (BY), Colorado State University (US)
Openalex Percentile: Top 48%
Palliative Care and End-of-Life Issues
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“The body has a way of dying:” An embodied understanding of the pursuit of medical aid in dying among terminally ill individuals · Death Studies (2025) | TGRS Research Map | TGRS