Rare and resilient: Longer-term experiences of families after genetic evaluation in the neonatal intensive care unit
The NICU experience, particularly for infants with rare conditions, has long-lasting impact on the family. Enhanced attention to longitudinal supports from NICU to home may be beneficial for families undergoing genetic diagnostic odysseys.
Authors
- Monica H. Wojcik (ORCID: https://orcid.org/0000-0002-8162-5031)
- Ingrid A. Holm (ORCID: https://orcid.org/0000-0003-4712-8821)
- Maya del Rosario
- Siwaar Abouhala (ORCID: https://orcid.org/0000-0002-8060-6621)
Institutions
- Boston Children's Hospital (US)
- Harvard University (US)
Publication Details
- Journal
- Genetics in Medicine Open
- Published
- 2025-12-20
- DOI
- https://doi.org/10.1016/j.gimo.2025.103490
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00