Building Real-World Evidence Infrastructure to Improve Health and Healthcare in the United States: Part I—Coordinated Registry Networks and Systemic Coordinated Inter-Organizational Networks
CRNs have the potential to transform evidence generation in healthcare by curating and integrating multiple data sources that can address the data needs of multiple CRN partners. This American solution to the provision of evidence for supporting decision-making in healthcare builds on professional society relationships; the CRN model has demonstrated success in large national registries and warrants expansion to other specialty areas. By understanding the organizational sociology of CRNs, we can unlock their full potential to drive innovation, efficiency, and quality improvement in healthcare.
Authors
- Julia Skapik (ORCID: https://orcid.org/0000-0001-7847-9363)
- Colin W. Shepard
- Ali B. Abbasi (ORCID: https://orcid.org/0000-0002-1039-2832)
- Santiago J. Molina (ORCID: https://orcid.org/0000-0001-9049-518X)
- Brian S. Anderson (ORCID: https://orcid.org/0000-0001-9749-4104)
- Laura E. Gressler (ORCID: https://orcid.org/0000-0003-2042-2174)
- Osman N. Yoğurtçu (ORCID: https://orcid.org/0000-0003-4987-3753)
- Wilbur C. Hadden (ORCID: https://orcid.org/0000-0001-8572-2990)
- Philip P. Goodney (ORCID: https://orcid.org/0000-0002-3973-3506)
- Jens Eldrup‐Jorgensen (ORCID: https://orcid.org/0000-0002-5358-0577)
- Gregory Pappas (ORCID: https://orcid.org/0000-0001-9507-0674)
- Orestis A. Panagiotou (ORCID: https://orcid.org/0000-0001-9604-8380)
- Kashif Haqqi
- James E. Tcheng (ORCID: https://orcid.org/0000-0001-6231-5567)
Institutions
- Northwestern University (US)
- Dartmouth–Hitchcock Medical Center (US)
- Center for Biologics Evaluation and Research (US)
- Center for Drug Evaluation and Research (US)
- Duke University (US)
- University of California, San Francisco (US)
- TuBerculosis Vaccine Initiative (NL)
- Society for Vascular Surgery (US)
- National Center for Health Research (US)
- Rafiki Coalition (US)
- Clinical Solutions (US)
- University of Maryland, College Park (US)
- University of Arkansas for Medical Sciences (US)
Publication Details
- Journal
- International Journal of Translational Medical Research and Public Health
- Published
- 2025-12-20
- DOI
- https://doi.org/10.25259/ijtmrph_74_2024
- Citations
- 1
- Primary Topic
- Healthcare Policy and Management
- Type
- article
- Field-Weighted Citation Impact
- 3.13