Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer
In this survey study, a measurement tool was developed and tested that captures HRQOL issues of importance and relevance to AYAs from diverse cultures and with different cancer and treatment types. This HRQOL questionnaire could be a reliable and valid tool for both clinical trials and practice.
Authors
- Emma Lidington (ORCID: https://orcid.org/0000-0001-6176-8054)
- Alessandra Majorana (ORCID: https://orcid.org/0000-0003-0252-533X)
- Marianne G. Guren (ORCID: https://orcid.org/0000-0003-0593-0218)
- Irit Ben‐Aharon (ORCID: https://orcid.org/0000-0002-5839-5477)
- Haneen Abaza (ORCID: https://orcid.org/0000-0002-1039-7318)
- Oana C. Lindner (ORCID: https://orcid.org/0000-0001-5442-8393)
- Katrin Scheinemann (ORCID: https://orcid.org/0000-0002-3578-7152)
- Chana Korenblum
- Gudrun Rohde (ORCID: https://orcid.org/0000-0002-8538-7237)
- Noam Yarom (ORCID: https://orcid.org/0000-0001-9771-7857)
- Fiona E. J. McDonald (ORCID: https://orcid.org/0000-0003-4484-4929)
- Silvie H. M. Janssen (ORCID: https://orcid.org/0000-0003-1406-1739)
- Samantha Claire Sodergren (ORCID: https://orcid.org/0000-0001-8755-146X)
- Frances Patel (ORCID: https://orcid.org/0000-0001-8559-0692)
- Hiroto Ishiki (ORCID: https://orcid.org/0000-0002-0800-2161)
- Iwona Ługowska (ORCID: https://orcid.org/0000-0001-9511-178X)
- Marta Pérez‐Campdepadrós (ORCID: https://orcid.org/0009-0006-2869-224X)
- Jeanette Winterling (ORCID: https://orcid.org/0000-0003-4165-9015)
- N. Stavrou (ORCID: https://orcid.org/0000-0001-7578-3001)
- Anne‐Sophie Darlington (ORCID: https://orcid.org/0000-0003-4387-7278)
- Olga Husson (ORCID: https://orcid.org/0000-0002-1387-8686)
- Maria Otth (ORCID: https://orcid.org/0000-0002-2839-502X)
- Helle Pappot (ORCID: https://orcid.org/0000-0002-3570-5372)
- Denise Hancock
- Ali Alkan (ORCID: https://orcid.org/0000-0002-8253-5046)
- Nikolaos Memos (ORCID: https://orcid.org/0000-0001-6671-475X)
- Line Bentsen (ORCID: https://orcid.org/0000-0003-2459-6462)
- Manjunath Nookala Krishnamurthy (ORCID: https://orcid.org/0000-0002-9187-842X)
- Duška Petranović (ORCID: https://orcid.org/0000-0001-9225-956X)
- Amal Al‐Omari (ORCID: https://orcid.org/0000-0001-7571-3097)
- Georgios Ioannidis (ORCID: https://orcid.org/0000-0003-2535-7279)
- Jelena Roganović (ORCID: https://orcid.org/0000-0002-2950-4056)
- Dan Stark (ORCID: https://orcid.org/0000-0002-6172-733X)
- Tayhla Ryder (ORCID: https://orcid.org/0000-0002-8761-4552)
- Diana Richter
- Michael Koehler
- Serdar Turhal
- MZ Hossain
- Anna Sikora-Koperska
- Ingunn Holtskog
- Mor Bar-Ilan
Institutions
- European Organisation for Research and Treatment of Cancer (NL)
- Oslo University Hospital (NO)
- The University of Sydney (AU)
- Hospital Sant Joan de Déu Barcelona (ES)
- University of Leeds (GB)
- Karolinska University Hospital (SE)
- Anadolu University (TR)
- University of Rijeka (HR)
- University of Lucerne (CH)
- Tel Aviv University (IL)
- Queen Mary University of London (GB)
- University of Oslo (NO)
- Homi Bhabha National Institute (IN)
- University of Agder (NO)
- King Hussein Cancer Center (JO)
- Sheba Medical Center (IL)
- Nicosia General Hospital (CY)
- Rambam Health Care Campus (IL)
- Erasmus MC (NL)
- Copenhagen University Hospital (DK)
- Princess Margaret Cancer Centre (CA)
- Rigshospitalet (DK)
- Klinikum Magdeburg (DE)
- Agder Research (NO)
- National Institute of Oncology (HU)
- Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital (NL)
- University Children's Hospital Zurich (CH)
- Children's Hospital Zagreb (HR)
- University Hospital Magdeburg (DE)
- Canteen (AU)
- Erasmus MC Cancer Institute (NL)
- The Maria Sklodowska-Curie National Research Institute of Oncology (PL)
- Tokyo National Hospital (JP)
- Advanced Centre for Treatment, Research and Education in Cancer (IN)
- Sørlandet Sykehus (NO)
- Ostschweizer Kinderspital (CH)
- Hippocration General Hospital (GR)
- University of Southampton (GB)
- University College London (GB)
- Marie Curie (GB)
- University of Brescia (IT)
- Muğla University (TR)
- Leipzig University (DE)
Publication Details
- Journal
- JAMA Network Open
- Published
- 2025-12-19
- DOI
- https://doi.org/10.1001/jamanetworkopen.2025.49071
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49