Implementing an eHealth Model of Care for Pediatric Patients and Families at the End of Treatment for Acute Lymphoblastic Leukemia (EMERGE): Type 2 Nonrandomized Hybrid Implementation-Effectiveness Trial Study Protocol

This study will address a critical gap in multidisciplinary care delivery at the end of treatment for young survivors of acute lymphoblastic leukemia and their families. The EMERGE model has the potential to improve the quality of life of patients and families by providing an early survivorship intervention. Importantly, the usage of an eHealth (telehealth) model will enable distance-delivered care, facilitating family participation regardless of geography. By measuring implementation, clinical, and cost impacts, this study will inform the future development of end-of-treatment models of care that are almost universally lacking in pediatric oncology care.

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Publication Details

Journal
JMIR Research Protocols
Published
2025-12-19
DOI
https://doi.org/10.2196/85901
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
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article

Implementing an eHealth Model of Care for Pediatric Patients and Families at the End of Treatment for Acute Lymphoblastic Leukemia (EMERGE): Type 2 Nonrandomized Hybrid Implementation-Effectiveness Trial Study Protocol

Ken Knight, Maria McCarthy, Michelle Tennant, Peter Downie et al.
JMIR Research Protocols
Childhood Cancer Survivors' Quality of Life
article

Implementing an eHealth Model of Care for Pediatric Patients and Families at the End of Treatment for Acute Lymphoblastic Leukemia (EMERGE): Type 2 Nonrandomized Hybrid Implementation-Effectiveness Trial Study Protocol

Ken Knight, Maria McCarthy, Michelle Tennant, Peter Downie, J. L. Templeton, Stephen J. C. Hearps, Hannah Pring, Cinzia R. De Luca, Richard De Abreu Lourenço, Katie Moore, Chris Williams
article en

Abstract

This study will address a critical gap in multidisciplinary care delivery at the end of treatment for young survivors of acute lymphoblastic leukemia and their families. The EMERGE model has the potential to improve the quality of life of patients and families by providing an early survivorship intervention. Importantly, the usage of an eHealth (telehealth) model will enable distance-delivered care, facilitating family participation regardless of geography. By measuring implementation, clinical, and cost impacts, this study will inform the future development of end-of-treatment models of care that are almost universally lacking in pediatric oncology care.

JMIR Research ProtocolsVol. 15
University of Technology Sydney (AU), Royal Children's Hospital (AU), The University of Melbourne (AU), Monash Children’s Hospital (AU), Murdoch Children's Research Institute (AU), Paediatric Integrated Cancer Service (AU), Monash University (AU)
Openalex Percentile: Top 49%
Childhood Cancer Survivors' Quality of Life
DOIOpen Access PDFOpenAlex
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Implementing an eHealth Model of Care for Pediatric Patients and Families at the End of Treatment for Acute Lymphoblastic Leukemia (EMERGE): Type 2 Nonrandomized Hybrid Implementation-Effectiveness Trial Study Protocol — Ken Knight, Maria McCarthy, et al. · JMIR Research Protocols (2025) | TGRS Research Map | TGRS