Perceptions of endometriosis surgery on TikTok: quality and implications for patient counselling

This is the first study to systematically evaluate TikTok content focused on surgical management of endometriosis, demonstrating that patient-generated videos overwhelmingly drive the conversation. While patients frequently describe benefits such as diagnostic clarity and symptom relief, they also highlight barriers to surgery, postoperative challenges, recurrent symptoms, and experiences of medical gaslighting. Patient-created videos had significantly lower information quality than provider-generated content, underscoring a critical gap in evidence-based surgical education on social media and an opportunity for clinician engagement.

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Publication Details

Journal
Facts Views and Vision in ObGyn
Published
2025-12-19
DOI
https://doi.org/10.52054/fvvo.2025.198
Primary Topic
Social Media in Health Education
Type
article
Field-Weighted Citation Impact
0.00
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article

Perceptions of endometriosis surgery on TikTok: quality and implications for patient counselling

Andrea Pelletier, Golnaz Namazi, Jaya Prakash, Amber Trujillo Lalla
Facts Views and Vision in ObGyn
Social Media in Health Education
article

Perceptions of endometriosis surgery on TikTok: quality and implications for patient counselling

Andrea Pelletier, Golnaz Namazi, Jaya Prakash, Amber Trujillo Lalla
article en

Abstract

This is the first study to systematically evaluate TikTok content focused on surgical management of endometriosis, demonstrating that patient-generated videos overwhelmingly drive the conversation. While patients frequently describe benefits such as diagnostic clarity and symptom relief, they also highlight barriers to surgery, postoperative challenges, recurrent symptoms, and experiences of medical gaslighting. Patient-created videos had significantly lower information quality than provider-generated content, underscoring a critical gap in evidence-based surgical education on social media and an opportunity for clinician engagement.

Facts Views and Vision in ObGynVol. 17(4)
Brigham and Women's Hospital (US)
Openalex Percentile: Top 50%
Social Media in Health Education
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