It Is Personal: What People with Parkinson's Disease Say Matters Most for Quality of Life
Factors that are not direct consequences of the disease, but may be highly personal and interfere with what one finds meaningful, emerged as highly relevant. Symptoms also greatly impacted quality of life for most individuals, but specific symptoms varied across individuals. Quality of life determinants in people with Parkinson's disease appear highly individualized, and currently used measurement tools with fixed items may not be optimal. © 2025 The Author(s). Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and Movement Disorder Society. © 2025 The Author(s). Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and Movement Disorder Society.
Authors
- Soania Mathur (ORCID: https://orcid.org/0000-0002-6224-7573)
- Jamie Adams (ORCID: https://orcid.org/0000-0002-1170-6688)
- Jennifer R. Mammen (ORCID: https://orcid.org/0000-0001-7858-9183)
- Glenn T. Stebbins (ORCID: https://orcid.org/0000-0001-7905-9336)
- Allison M Allen (ORCID: https://orcid.org/0000-0002-2039-6773)
- Connie Marras (ORCID: https://orcid.org/0000-0002-9236-9328)
- Anette E. Schrag (ORCID: https://orcid.org/0000-0002-9872-6680)
- Gary Rafaloff (ORCID: https://orcid.org/0000-0002-2625-2025)
- Rajasumi Rajalingam (ORCID: https://orcid.org/0000-0002-2564-7375)
- Onanong Phokaewvarangkul (ORCID: https://orcid.org/0000-0003-0060-9935)
- Tara Hastings
- Christine Sun (ORCID: https://orcid.org/0009-0007-8136-1180)
- Rajkumar Patel (ORCID: https://orcid.org/0009-0004-6180-7892)
- Samantha Dorrance (ORCID: https://orcid.org/0009-0002-2488-0244)
Institutions
- University of Massachusetts Dartmouth (US)
- Rush University Medical Center (US)
- Thai Red Cross Society (TH)
- University Health Network (CA)
- Western Michigan University (US)
- Chulalongkorn University (TH)
- University of Toronto (CA)
- Toronto Western Hospital (CA)
- King Chulalongkorn Memorial Hospital (TH)
- Advocate Health Care (US)
- Sanofi (United States) (US)
- Duke Medical Center (US)
- The Stables (GB)
- Parkinson's Foundation (US)
- University College London (GB)
- Stryker (United States) (US)
- University of Rochester (US)
Publication Details
- Journal
- Movement Disorders
- Published
- 2025-12-12
- DOI
- https://doi.org/10.1002/mds.70134
- Primary Topic
- Parkinson's Disease Mechanisms and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- U.S. Department of Defense
- Michael J. Fox Foundation for Parkinson's Research
- Alzheimer's Association
- Eli Lilly and Company
- Pfizer
- Biogen
- CHDI Foundation
- Teva Pharmaceutical Industries
- International Parkinson and Movement Disorder Society
- Ottawa Hospital Research Institute
- Weston Brain Institute
- Parkinson's Foundation
- Neurocrine Biosciences
- National Institute for Health and Care Research
- Parkinson's UK
- University College London
- University of Oxford
- European Commission
- Eisai
- H. Lundbeck A/S
- National Institutes of Health
- Economic and Social Research Council
- National Institute of Nursing Research
- National Institute of Neurological Disorders and Stroke
- Dystonia Coalition