<scp>MDS PD</scp> e‐Diary: A New Patient‐Centered Digital Tool in Development for People with Parkinson's Disease
The MDS PD e-Diary was designed to capture PD progression and its impact on PwP lives, potentially transforming research and clinical practice. Its further development and validation processes are underway.
Authors
- Mariana H.G. Monje (ORCID: https://orcid.org/0000-0002-0730-4061)
- Rebecca Fuller (ORCID: https://orcid.org/0000-0001-6545-7376)
- K. J. Bergmann
- Serene Sulyn Paul (ORCID: https://orcid.org/0000-0002-3593-1396)
- Pablo Rábano‐Suárez
- Michelle Hyczy de Siqueira Tosin (ORCID: https://orcid.org/0000-0001-7309-1407)
- Marieke C. J. Dekker
- Jesse M. Cedarbaum (ORCID: https://orcid.org/0000-0002-5146-8784)
- Alberto J. Espay (ORCID: https://orcid.org/0000-0002-3389-136X)
- Travis H. Turner (ORCID: https://orcid.org/0000-0002-5729-4623)
- Walter Maetzler (ORCID: https://orcid.org/0000-0002-5945-4694)
- Tiago Mestre (ORCID: https://orcid.org/0000-0002-6973-7479)
- Pablo Martínez‐Martín (ORCID: https://orcid.org/0000-0003-0837-5280)
- Glenn T. Stebbins (ORCID: https://orcid.org/0000-0001-7905-9336)
- Álvaro Sánchez‐Ferro (ORCID: https://orcid.org/0000-0003-2461-2485)
- Michael A. Morse (ORCID: https://orcid.org/0000-0002-5725-4533)
- Joaquín A. Vizcarra (ORCID: https://orcid.org/0000-0003-0306-4774)
- Matěj Škorvánek (ORCID: https://orcid.org/0000-0001-5497-8715)
- Deborah A. Hall (ORCID: https://orcid.org/0000-0003-2772-7851)
- Sabela Avión
Institutions
- Northwestern University (US)
- Rush University Medical Center (US)
- The University of Sydney (AU)
- United States Food and Drug Administration (US)
- Center for Drug Evaluation and Research (US)
- Medical University of South Carolina (US)
- University of Ottawa (CA)
- University of Pavol Jozef Šafárik (SK)
- CHDI Foundation (US)
- Davis Phinney Foundation (US)
- Hochschule für Angewandte Wissenschaften Kiel (DE)
- Christian-Albrechts-Universität zu Kiel (DE)
- Yale University (US)
- Biomedical Research Networking Center on Neurodegenerative Diseases (ES)
- MIND Research Institute (US)
- Hospital Universitario 12 De Octubre (ES)
- Univerzitná Nemocnica Louisa Pasteura (SK)
- Centre for Movement Disorders (CA)
- University Hospital Schleswig-Holstein (DE)
- Cancer Care Nova Scotia (CA)
- Kilimanjaro Christian Medical Centre (TZ)
- University of Cincinnati (US)
- University of Pennsylvania (US)
- University of Lübeck (DE)
Publication Details
- Journal
- Movement Disorders Clinical Practice
- Published
- 2025-12-12
- DOI
- https://doi.org/10.1002/mdc3.70305
- Primary Topic
- Parkinson's Disease Mechanisms and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- U.S. Department of Veterans Affairs
- Michael J. Fox Foundation for Parkinson's Research
- Biogen
- CHDI Foundation
- Teva Pharmaceutical Industries
- University of Pennsylvania
- Northwestern University
- International Parkinson and Movement Disorder Society
- Boston Scientific Corporation
- University of Ottawa
- Rush University
- Fondation Brain Canada
- Wounds Australia
- Acorda Therapeutics
- Marcus Foundation
- Physicians' Services Incorporated Foundation
- University of Cambridge
- European Commission
- Agentúra na Podporu Výskumu a Vývoja
- Physiotherapy Research Foundation
- EVER Neuro Pharma
- Parkinson Canada
- Mitsubishi Tanabe Pharma Corporation
- Ipsen
- National Institutes of Health
- Perelman School of Medicine, University of Pennsylvania
- Feinberg School of Medicine
- Canadian Institutes of Health Research