Linking the NETSARC+ National Sarcoma Database With the SNDS to Evaluate Adjuvant and/or Neoadjuvant Therapy: Report on the Linkage Process and Result (Health Data Hub's DEEPSARC Pilot Project)

An optimized and transparent process led to a moderate matching rate but enhanced the confidence in true matching. Representativeness is an issue related to the missing data pattern across the three NETSARC databases. For instance, an individual present only in the RREPS database has a greater probability of not being linked.

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Publication Details

Journal
Fundamental and Clinical Pharmacology
Published
2025-12-11
DOI
https://doi.org/10.1111/fcp.70066
Primary Topic
Prostate Cancer Diagnosis and Treatment
Type
article
Field-Weighted Citation Impact
0.00

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article

Linking the NETSARC+ National Sarcoma Database With the SNDS to Evaluate Adjuvant and/or Neoadjuvant Therapy: Report on the Linkage Process and Result (Health Data Hub's DEEPSARC Pilot Project)

Erwan Drézen, Françoise Ducimetière, Gonzague Du Bouexic De Pinieux, Nicolas Penel et al.
Fundamental and Clinical Pharmacology
Prostate Cancer Diagnosis and Treatment
article

Linking the NETSARC+ National Sarcoma Database With the SNDS to Evaluate Adjuvant and/or Neoadjuvant Therapy: Report on the Linkage Process and Result (Health Data Hub's DEEPSARC Pilot Project)

Erwan Drézen, Françoise Ducimetière, Gonzague Du Bouexic De Pinieux, Nicolas Penel, F. Gouin, François Le Loarer, Hugo Crochet, Simone Mathoulin-Pelissier, Emmanuel Oger, Vincent Thevenet, André Happe, Jean-Yves Blay, Claire Chemin Airiau
article en

Abstract

An optimized and transparent process led to a moderate matching rate but enhanced the confidence in true matching. Representativeness is an issue related to the missing data pattern across the three NETSARC databases. For instance, an individual present only in the RREPS database has a greater probability of not being linked.

Fundamental and Clinical PharmacologyVol. 40(1)
Université Claude Bernard Lyon 1 (FR), Université de Tours (FR), Université de Bordeaux (FR), Inserm (FR), Centre Hospitalier Universitaire de Tours (FR), Centre Léon Bérard (FR), Bordeaux Population Health (FR), Centre Oscar Lambret (FR), Sol Agro et hydrosystème Spatialisation (FR), Institut Bergonié (FR), Université de Rennes (FR)
Agence Nationale de la Recherche, Institut National de la Santé et de la Recherche Médicale, Fondation ARC pour la Recherche sur le Cancer, Ligue Contre le Cancer, Institut National Du Cancer, Direction Générale de l’offre de Soins, LabEx DEvweCAN, European Network for Rare Adult Solid Cancers
Openalex Percentile: Top 41%
Prostate Cancer Diagnosis and Treatment
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