Sources and consequences of self-doubt in patients with Ehlers-Danlos syndrome: a qualitative study in Europe and North America
These findings have important implications for clinicians, who may inadvertently reinforce self-doubt through discussion of diagnostic uncertainty. Doubt need not be delegitamising. Recognising and mitigating these potential harms requires epistemic humility and attention to the psychosocial dynamics of patient-provider interaction.
Authors
- Clair A. Francomano (ORCID: https://orcid.org/0000-0002-4032-7425)
- Colin Halverson (ORCID: https://orcid.org/0000-0002-4205-7860)
- Tom Doyle (ORCID: https://orcid.org/0000-0002-8565-0648)
- Samantha L Vershaw
Institutions
- Indiana University School of Medicine
- Indiana University – Purdue University Indianapolis (US)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1136/bmjopen-2025-109681
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institutes of Health