Patient perspectives on gender identity and anatomy data collection in electronic health records: a qualitative study

GI data collection efforts in clinical settings must consider the implication of anatomy data collection when determining data collection best practice methodologies. Anticipated and experienced stigma remain significant hurdles to patient comfort and willingness to collect GI and anatomy data, and their impact on actual data collection should be further elucidated among diverse gender identities. Clinical data collection methods, tools, and education warrant ongoing research investment to further elucidate best practices.

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Publication Details

Journal
Journal of the American Medical Informatics Association
Published
2025-11-15
DOI
https://doi.org/10.1093/jamia/ocaf205
Primary Topic
Sex and Gender in Healthcare
Type
article
Field-Weighted Citation Impact
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article

Patient perspectives on gender identity and anatomy data collection in electronic health records: a qualitative study

Samuel Dubin, Richard E. Greene, Gal Mayer, N. Pradhan et al.
Journal of the American Medical Informatics Association
Sex and Gender in Healthcare
article

Patient perspectives on gender identity and anatomy data collection in electronic health records: a qualitative study

Samuel Dubin, Richard E. Greene, Gal Mayer, N. Pradhan, Madeline Xin
article en

Abstract

GI data collection efforts in clinical settings must consider the implication of anatomy data collection when determining data collection best practice methodologies. Anticipated and experienced stigma remain significant hurdles to patient comfort and willingness to collect GI and anatomy data, and their impact on actual data collection should be further elucidated among diverse gender identities. Clinical data collection methods, tools, and education warrant ongoing research investment to further elucidate best practices.

Journal of the American Medical Informatics AssociationVol. 33(3)
New York City Health and Hospitals Corporation (US), NYU Langone Health (US), The Ohio State University (US), New York University (US)
Openalex Percentile: Top 49%
Sex and Gender in Healthcare
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Patient perspectives on gender identity and anatomy data collection in electronic health records: a qualitative study — Samuel Dubin, Richard E. Greene, et al. · Journal of the American Medical Informatics Association (2025) | TGRS Research Map | TGRS