Patient perspectives on gender identity and anatomy data collection in electronic health records: a qualitative study
GI data collection efforts in clinical settings must consider the implication of anatomy data collection when determining data collection best practice methodologies. Anticipated and experienced stigma remain significant hurdles to patient comfort and willingness to collect GI and anatomy data, and their impact on actual data collection should be further elucidated among diverse gender identities. Clinical data collection methods, tools, and education warrant ongoing research investment to further elucidate best practices.
Authors
- Samuel Dubin (ORCID: https://orcid.org/0000-0003-4124-8005)
- Richard E. Greene (ORCID: https://orcid.org/0000-0001-8618-7723)
- Gal Mayer
- N. Pradhan
- Madeline Xin
Institutions
- New York City Health and Hospitals Corporation (US)
- NYU Langone Health (US)
- The Ohio State University (US)
- New York University (US)
Publication Details
- Journal
- Journal of the American Medical Informatics Association
- Published
- 2025-11-15
- DOI
- https://doi.org/10.1093/jamia/ocaf205
- Primary Topic
- Sex and Gender in Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00