The Lived Experience of Individuals with a Tracheostomy and their Caregivers: A Qualitative Analysis
Tracheostomy patients face compounded vulnerabilities, highlighting the need for holistic, patient-centered care models that address physical, social, and emotional challenges. Inclusive and adaptive healthcare practices are essential to mitigate risks, reduce stigma, and enhance the quality of life for individuals with a tracheostomy and caregivers, especially during healthcare crises.
Authors
- Vinciya Pandian (ORCID: https://orcid.org/0000-0002-2260-1080)
- Michael Joel Brenner (ORCID: https://orcid.org/0000-0003-4926-0957)
- Erin Ward (ORCID: https://orcid.org/0009-0000-4109-0784)
- Sarah Allgood (ORCID: https://orcid.org/0000-0003-0259-6613)
- Amy L. Freeman-Sanderson (ORCID: https://orcid.org/0000-0003-2161-6421)
- Ethan D. Sperry (ORCID: https://orcid.org/0000-0003-1233-4502)
- Barbara Bosworth
- Chandler H. Moser (ORCID: https://orcid.org/0000-0002-6975-4148)
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Boston Children's Hospital (US)
- Pennsylvania State University (US)
- Madigan Army Medical Center (US)
- Johns Hopkins University (US)
- University of Michigan (US)
- Royal Prince Alfred Hospital (AU)
- Johns Hopkins Medicine (US)
- Australian and New Zealand Intensive Care Society (AU)
- WestCare Foundation (US)
- The George Institute for Global Health (AU)
- Collaborative Group (United States) (US)
- Community Connections (US)
- Monash University (AU)
Publication Details
- Journal
- Tracheostomy Official Journal of the Global Tracheostomy Collaborative
- Published
- 2025-12-01
- DOI
- https://doi.org/10.62905/001c.147784
- Primary Topic
- Tracheal and airway disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- U.S. Department of Health and Human Services
- Agency for Healthcare Research and Quality