Conceptual Development Informing the Kidney Failure Patient Life Goals Survey
The new D-PaLS is a brief survey that was based on extensive input from patient and clinical provider stakeholders that supported elicitation of the measure concept and item development. The D-PaLS has the potential to support shared decision-making in treatment planning for people with KF. Stakeholder support is necessary throughout patient-reported outcome measure measure development to ensure content is meaningful and captures experiences and outcomes that are important to the patients.
Authors
- Jennifer Sardone
- Jesse Roach
- Richard A. Hirth (ORCID: https://orcid.org/0000-0002-0654-3220)
- Joel Andress
- Jennifer Ann Miner (ORCID: https://orcid.org/0000-0003-2722-1121)
- Stephanie Clark (ORCID: https://orcid.org/0000-0002-4099-4164)
- Kate Price
- Noelle E. Carlozzi (ORCID: https://orcid.org/0000-0003-0439-9429)
- Elena Balovlenkov
- Claudia Dahlerus (ORCID: https://orcid.org/0000-0003-4159-280X)
- Joseph M. Messana (ORCID: https://orcid.org/0000-0003-4650-5306)
- Jonathan H. Segal
Institutions
- University of Michigan (US)
- Michigan Medicine (US)
- Centers for Medicare and Medicaid Services (US)
Publication Details
- Journal
- Kidney Medicine
- Published
- 2025-12-12
- DOI
- https://doi.org/10.1016/j.xkme.2025.101203
- Primary Topic
- Dialysis and Renal Disease Management
- Type
- article
- Field-Weighted Citation Impact
- 0.00