Self‐Experienced Difficulties in Communicative Participation in Children With Speech, Language and Communication Needs—A Concept Elicitation Study
What is already known on this subject Communicative participation is the key outcome of speech and language therapy. However, there is a lack of measurement instruments (preferably patient-reported outcome measures, PROMs) to assess communicative participation of children. Additionally, children's own perspectives on their communicative participation, which could inform the development of such an instrument, have not yet been explored. What this paper adds to existing knowledge This study focuses on communicative participation situations as described by children with speech, language and communication needs (SLCN). Based on children's own experiences, 44 concepts describing communicative participation were identified. What are the potential or actual clinical implications of this work? This study enhances a comprehensive understanding of communicative participation from the perspective of children. The identified concepts can already be used in conversations with children about their communicative participation. Additionally, the findings will contribute to the development of an item bank for measuring communicative participation in children with speech, language and communication needs.
Authors
- Margreet Luinge (ORCID: https://orcid.org/0000-0003-2855-3523)
- Lizet van Ewijk (ORCID: https://orcid.org/0000-0002-8916-8023)
- Ellen Gerrits (ORCID: https://orcid.org/0000-0002-4403-0792)
- Eline Alons (ORCID: https://orcid.org/0000-0002-1593-5082)
- Caroline B. Terwee (ORCID: https://orcid.org/0000-0003-4570-2826)
- Bianca Berndsen‐van Swaaij (ORCID: https://orcid.org/0009-0006-7147-1602)
Institutions
- University of Applied Sciences Utrecht (NL)
- Hanze University of Applied Sciences (NL)
- Utrecht University (NL)
- Department of Health and Aged Care (AU)
- Amsterdam University Medical Centers (NL)
- Vrije Universiteit Amsterdam (NL)
Publication Details
- Journal
- International Journal of Language & Communication Disorders
- Published
- 2025-12-11
- DOI
- https://doi.org/10.1111/1460-6984.70170
- Primary Topic
- Language Development and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- ZonMw
- Universiteit Utrecht