Rethinking Complex Care Using Participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: Participatory Action Research Study
This case exemplifies the value of collaborative, multidisciplinary, and technology-enabled participatory medical cognition platforms for managing complex multimorbidity. By integrating patient-reported data, AI-supported evidence synthesis, and asynchronous expert consultation, such ecosystems can enable holistic, evidence-based care, reduce overtreatment, support patient empowerment, and enhance clinical education, particularly in resource-limited and geographically dispersed contexts. Although this study presents a single case, wider adoption of similar digital platforms could significantly improve management of complex patients and foster a new model of user-driven, participatory health care and learning.
Authors
- Nicole E. Pal (ORCID: https://orcid.org/0009-0006-1874-7913)
- Madhava Sai Sivapuram (ORCID: https://orcid.org/0000-0003-2022-9630)
- A. F. Salam (ORCID: https://orcid.org/0000-0002-3602-3461)
- Rakesh Biswas (ORCID: https://orcid.org/0000-0001-7694-3660)
- Ayushi Tandon (ORCID: https://orcid.org/0000-0001-9824-4334)
- Aditya Samitinjay (ORCID: https://orcid.org/0000-0001-9303-2412)
- Mansi Agrawal (ORCID: https://orcid.org/0009-0004-8484-5859)
- Tamoghna Biswas (ORCID: https://orcid.org/0000-0003-2114-8197)
- Rahul Kulkarni (ORCID: https://orcid.org/0009-0007-0462-504X)
- Sailaja Gade (ORCID: https://orcid.org/0009-0009-7170-3073)
- Braahmani Bobba (ORCID: https://orcid.org/0009-0008-5370-9941)
- Rishika Koloti (ORCID: https://orcid.org/0009-0007-6542-2772)
- Champakali Biswas (ORCID: https://orcid.org/0009-0006-8444-6406)
Institutions
- Assam Don Bosco University (IN)
- Trinity College Dublin (IE)
- Royal College of Ophthalmologists (GB)
- Mahatma Gandhi Memorial Medical College (IN)
- Watford General Hospital (GB)
- Department for Work and Pensions (GB)
- Patient Advocate Foundation (US)
- The University of Adelaide (AU)
- University of Duhok (IQ)
- Kamineni Institute of Dental Sciences (IN)
Publication Details
- Journal
- Journal of Participatory Medicine
- Published
- 2025-09-28
- DOI
- https://doi.org/10.2196/81950
- Primary Topic
- Chronic Disease Management Strategies
- Type
- article
- Field-Weighted Citation Impact
- 0.00