Association Between a Novel Adult Congenital Heart Disease-Specific Patient-Reported Health Status Metric and Objective Clinical Status
A lower ACHD PRO V.1 summary score is associated with a history of unplanned cardiac admission. In addition, the ACHD PRO V.1 domains show good content validity by comparison with relevant clinical conditions and gold standard PROs. These data support the use of the ACHD PRO V.1 as a direct and surrogate clinical outcome in ACHD.
Authors
- Jong Mi Ko (ORCID: https://orcid.org/0000-0001-5681-1038)
- Shelby Kutty (ORCID: https://orcid.org/0000-0001-9428-0979)
- Susan M. Jameson (ORCID: https://orcid.org/0000-0002-3062-6827)
- Ari Cedars (ORCID: https://orcid.org/0000-0002-9975-5301)
- Liesbet Van Bulck (ORCID: https://orcid.org/0000-0001-8975-4455)
- Maryanne Caruana (ORCID: https://orcid.org/0000-0003-3947-3350)
- Vaikom S. Mahadevan (ORCID: https://orcid.org/0000-0001-6354-1873)
- Philip Moons (ORCID: https://orcid.org/0000-0002-8609-4516)
- Jamie L. Jackson (ORCID: https://orcid.org/0000-0002-1752-1377)
Institutions
- Nationwide Children's Hospital (US)
- Lucile Packard Children's Hospital (US)
- Johns Hopkins University (US)
- University of Cape Town (ZA)
- University of California, San Francisco (US)
- Johns Hopkins Medicine (US)
- Mater Dei Hospital (MT)
- Research Foundation - Flanders (BE)
- Department of Public Health (MM)
- Department of Public Health (US)
- University of Gothenburg (SE)
- KU Leuven (BE)
Publication Details
- Journal
- Circulation Heart Failure
- Published
- 2025-12-09
- DOI
- https://doi.org/10.1161/circheartfailure.125.012860
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00