Patient-reported outcome and experience measures in cardiovascular disease: a scoping review as part of iCARE4CVD
This review highlights the lack of consensus in the use, validation status and reporting of PROMs and PREMs in CVD research and care. Although validated, disease-specific PROMs are widely used for key outcomes such as quality of life, there is a lack of standardised PREMs tailored to CVDs. To advance patient-centred care in CVDs, there is a need for more consistent use of validated instruments, transparent reporting of administration methods, and the development of robust PREMs. Furthermore, standardising the PROMs and PREMs used may help, particularly with regard to the comparability of findings in different studies.
Authors
- Marlo Verket (ORCID: https://orcid.org/0000-0002-3361-3722)
- Thomas M. Helms
- Bettina Zippel‐Schultz (ORCID: https://orcid.org/0000-0003-4791-7222)
- Arno J Gingele (ORCID: https://orcid.org/0000-0002-4184-9866)
- Hans‐Peter Brunner‐La Rocca (ORCID: https://orcid.org/0000-0002-4356-8566)
- Bianca Steiner (ORCID: https://orcid.org/0000-0002-6762-8973)
- Anne McNulty (ORCID: https://orcid.org/0009-0000-5187-1971)
- Markus Schwertfeger
- Anne Neumann (ORCID: https://orcid.org/0000-0002-6884-079X)
- Carmen Hurtado
- Iñaki Romero
- Vianne Schiefel
- Sathish Sankarpandi
Institutions
- Roche (Switzerland) (CH)
- Queen's University Belfast (GB)
- Ostfalia University of Applied Sciences (DE)
- Maastricht University Medical Centre (NL)
- Deutsches Zentrum für Luft- und Raumfahrt e. V. (DLR) (DE)
- Maastricht University (NL)
- Breakthrough (US)
- Universitätsklinikum Aachen (DE)
- Spalding Trust (GB)
- Philips (Belgium) (BE)
- RWTH Aachen University (DE)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2025-12-09
- DOI
- https://doi.org/10.1186/s41687-025-00980-4
- Citations
- 1
- Primary Topic
- Cardiac Health and Mental Health
- Type
- article
- Field-Weighted Citation Impact
- 1.39