Hope, Hype, and Trust in Sickle Cell Disease

This Viewpoint discusses how to communicate trust for novel rare disease treatments using lessons learned from sickle cell disease.

Authors

Institutions

Publication Details

Journal
JAMA Pediatrics
Published
2025-12-08
DOI
https://doi.org/10.1001/jamapediatrics.2025.4749
Citations
1
Primary Topic
Hemoglobinopathies and Related Disorders
Type
article
Field-Weighted Citation Impact
1.63
Controls
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article

Hope, Hype, and Trust in Sickle Cell Disease

Liza‐Marie Johnson, Yoram Unguru, Akshay Sharma
1 citations
JAMA Pediatrics
Hemoglobinopathies and Related Disorders
1.63
article

Hope, Hype, and Trust in Sickle Cell Disease

Liza‐Marie Johnson, Yoram Unguru, Akshay Sharma
article en
1 citations

Abstract

This Viewpoint discusses how to communicate trust for novel rare disease treatments using lessons learned from sickle cell disease.

JAMA PediatricsVol. 180(2)
St. Jude Children's Research Hospital (US), Johns Hopkins Berman Institute of Bioethics (US)
Openalex Percentile: Top 11%
Hemoglobinopathies and Related Disorders
1.63
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Hope, Hype, and Trust in Sickle Cell Disease — Liza‐Marie Johnson, Yoram Unguru, et al. · JAMA Pediatrics (2025) | TGRS Research Map | TGRS