Distressing Bleeding Symptoms in Interviews of Patients With Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorder
Bleeding is a significant clinical concern and cause of distress in people with hypermobility correlating with the severity of bleeding, reflected by a high bleeding score. This unique assessment tool needs validation in a larger patient cohort. Increased awareness and further evaluation of this condition is needed to adequately serve this patient population.
Authors
- Sarah A. Mathena (ORCID: https://orcid.org/0000-0003-1195-1875)
- Rohith Jesudas (ORCID: https://orcid.org/0000-0002-9481-2581)
- Christina M. Laukaitis (ORCID: https://orcid.org/0000-0003-1466-7941)
- K Zhang (ORCID: https://orcid.org/0000-0001-7769-5611)
- Jennifer Andrews (ORCID: https://orcid.org/0000-0002-0064-3933)
Institutions
- Carle Foundation Hospital (US)
- St. Jude Children's Research Hospital (US)
- University of Arizona (US)
- Illinois College (US)
Publication Details
- Journal
- Haemophilia
- Published
- 2025-12-08
- DOI
- https://doi.org/10.1111/hae.70174
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 0.00