Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media
This novel social media listening study provides insights into the lived experiences of GCA and PMR. Patient conversations revealed multiple impacts on QOL and reflected a need for more effective, better-tolerated treatments and for greater disease awareness among healthcare professionals.
Authors
- Álvaro Arjona‐Sánchez (ORCID: https://orcid.org/0000-0002-3024-3009)
- Joyce Kullman (ORCID: https://orcid.org/0000-0003-0383-0926)
- Pranav Bharadwaj Arun
- Sarah Mackie (ORCID: https://orcid.org/0000-0003-2483-5873)
- V. M. Padmanabhan
Institutions
- Leeds Teaching Hospitals NHS Trust (GB)
- Novartis (India) (IN)
- NIHR Leeds Musculoskeletal Biomedical Research Unit (GB)
- Vasculitis Foundation (US)
- Novartis (Spain) (ES)
Publication Details
- Journal
- Rheumatology Advances in Practice
- Published
- 2025-11-28
- DOI
- https://doi.org/10.1093/rap/rkaf140
- Primary Topic
- Vasculitis and related conditions
- Type
- article
- Field-Weighted Citation Impact
- 0.00