Developing a minimum dataset for a national patient registry on Long COVID in Canada: a Delphi consensus-based study
The findings affirm broad consensus for collecting data related to fatigue, post-exertional malaise, cardiovascular issues, respiratory problems and cognitive issues. This highlighted the desire for quality-of-life indicators and information related to care utilisation, quality and access.
Authors
- Kathrina Mazurik (ORCID: https://orcid.org/0000-0001-6825-6756)
- Daphne Kemp
- Alison M. Hoens (ORCID: https://orcid.org/0000-0002-9533-9079)
- Donna Ellen Frederick (ORCID: https://orcid.org/0000-0002-2209-8307)
- Andrea Gruneir (ORCID: https://orcid.org/0000-0002-1972-6253)
- D Dumitrescu (ORCID: https://orcid.org/0009-0000-2134-4310)
- Catriona McLean (ORCID: https://orcid.org/0000-0002-0302-5727)
- Gayle Halas (ORCID: https://orcid.org/0000-0003-0433-0632)
- Simon Décary (ORCID: https://orcid.org/0000-0002-8672-5672)
- Michelle E. Kho (ORCID: https://orcid.org/0000-0003-3170-031X)
- Hammed Ejalonibu (ORCID: https://orcid.org/0000-0002-9084-6434)
- Adelaide Amah (ORCID: https://orcid.org/0000-0001-7015-1419)
- Bansari Chavda
Institutions
- Université de Sherbrooke (CA)
- University of British Columbia (CA)
- University of Alberta (CA)
- Saskatchewan Health Authority (CA)
- Saskatchewan Health (CA)
- University of Saskatchewan (CA)
- Saskatchewan Health Quality Council (CA)
- Institute for Clinical Evaluative Sciences (CA)
- University of Manitoba (CA)
- McMaster University (CA)
Publication Details
- Journal
- BMJ Open
- Published
- 2025-12-01
- DOI
- https://doi.org/10.1136/bmjopen-2025-111474
- Primary Topic
- Long-Term Effects of COVID-19
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Saskatchewan Health Research Foundation
- Canadian Institutes of Health Research