Improving healthcare transitions for neurodevelopmental disabilities: Statewide learning collaborative outcomes

A structured, statewide learning collaborative was feasible, highly engaging, and produced patient movement toward adult care. The results suggest that this collaborative model with facilitators embedded within teams can advance healthcare transition practices for individuals with NDD. In addition to the importance of garnering support from leadership, keystones of learning collaborative success include celebrating accomplishments, allocating dedicated resources to data collection and monitoring, embracing flexibility, and addressing resource shortcomings in the adult system of care. Future learning collaboratives designed to improve care transitions for patients with NDD would benefit from incorporating these considerations and addressing these foci explicitly.