Documented End‐of‐Life Preferences of People With Parkinson's Disease or Parkinsonism Across Europe
We found considerable variability in the presence of EoL care documentation across European regions. Public awareness and availability of advance directive templates likely contributed to the higher percentage of German participants with advance directives. These should be considered as best practices for enabling individuals with parkinsonism to document their preferences and receive care aligned with them.
Authors
- Per Odin (ORCID: https://orcid.org/0000-0002-0756-7478)
- Bauke W. Dijkstra (ORCID: https://orcid.org/0000-0002-6921-482X)
- Ülle Krikmann
- Marieke M. Groot (ORCID: https://orcid.org/0000-0002-5740-3607)
- Kristina Rosqvist (ORCID: https://orcid.org/0000-0002-3861-8012)
- Katie Flanagan (ORCID: https://orcid.org/0009-0000-3904-7402)
- Monica Scharfenort (ORCID: https://orcid.org/0000-0003-4415-1428)
- Michela Garon (ORCID: https://orcid.org/0000-0003-4945-5498)
- Angelo Antonini (ORCID: https://orcid.org/0000-0003-1040-2807)
- Katharina Maria Lex (ORCID: https://orcid.org/0000-0003-2258-4468)
- Katrin Sikk (ORCID: https://orcid.org/0000-0003-0470-1122)
- Spyros Konitsiotis
- Kris C. P. Vissers (ORCID: https://orcid.org/0000-0002-2919-6356)
- Catharina Muente (ORCID: https://orcid.org/0000-0002-3640-4010)
- Marjan J. Meinders (ORCID: https://orcid.org/0000-0001-6491-7035)
- Anette E. Schrag (ORCID: https://orcid.org/0000-0002-9872-6680)
- Stefan Lorenzl (ORCID: https://orcid.org/0000-0002-1165-0821)
- David J. Pedrosa (ORCID: https://orcid.org/0000-0002-5403-1959)
- Bastiaan R. Bloem
- Miltiadis Makrydimas
- Philip Poku
- Eirini Nixina
Institutions
- University of Padua (IT)
- Radboud University Nijmegen (NL)
- Philipps University of Marburg (DE)
- Queen Mary University of London (GB)
- Lund University (SE)
- University of Ioannina (GR)
- Paracelsus Medical University (AT)
- Universitätsmedizin Greifswald (DE)
- Tartu University Hospital (EE)
- Radboud University Medical Center (NL)
- Medizinische Hochschule Hannover (DE)
- North Estonia Medical Centre (EE)
- Skåne University Hospital (SE)
- University College London (GB)
- Marie Curie (GB)
- University of Tartu (EE)
- Rotterdam University of Applied Sciences (NL)
Publication Details
- Journal
- Movement Disorders Clinical Practice
- Published
- 2025-12-03
- DOI
- https://doi.org/10.1002/mdc3.70467
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Eli Lilly and Company
- Biogen
- AbbVie
- Boston Scientific Corporation
- Davis Phinney Foundation
- Esteve Pharmaceuticals
- Verily Life Sciences
- University of Oxford
- European Commission
- ZonMw
- Ministero della Salute
- Lunds Universitet
- Hersenstichting
- Maag Lever Darm Stichting
- Parkinson Vereniging
- HORIZON EUROPE Framework Programme