Biomedical data repositories require governance for artificial intelligence/machine learning applications at every step
This article discusses the challenges and lessons learned in data collection and governance to ensure their responsible use, particularly as confronted by the 4 distinct projects funded by this program.
Authors
- You Chen
- Ashley Cordes (ORCID: https://orcid.org/0000-0002-2118-6612)
- Jillian A. Parker (ORCID: https://orcid.org/0000-0003-4535-3486)
- Aaron Lee (ORCID: https://orcid.org/0000-0002-7452-1648)
- Yaël Bensoussan (ORCID: https://orcid.org/0000-0002-1635-8627)
- Nicholas G. Evans (ORCID: https://orcid.org/0000-0002-3330-0224)
- Benjamin Collins (ORCID: https://orcid.org/0000-0002-6884-3819)
- Joseph Yracheta (ORCID: https://orcid.org/0000-0002-0691-8504)
- Susannah Leigh Rose (ORCID: https://orcid.org/0000-0001-5895-7460)
- Samantha Hurst (ORCID: https://orcid.org/0000-0001-9843-2845)
- Xiaoqian Jiang (ORCID: https://orcid.org/0000-0001-9933-2205)
- Shannon K. McWeeney (ORCID: https://orcid.org/0000-0001-8333-6607)
- Barbara J. Evans (ORCID: https://orcid.org/0000-0001-8115-7971)
- Eric S. Rosenthal (ORCID: https://orcid.org/0000-0003-3900-356X)
- Zhijun Yin (ORCID: https://orcid.org/0000-0002-3075-1337)
- Laurie Lovett Novak (ORCID: https://orcid.org/0000-0002-0415-4301)
- Jean‐Christophe Bélisle‐Pipon (ORCID: https://orcid.org/0000-0002-8965-8153)
- Kadija Ferryman (ORCID: https://orcid.org/0000-0001-8552-1822)
- Bradley Malin (ORCID: https://orcid.org/0000-0003-3040-5175)
- Ellen Wright Clayton (ORCID: https://orcid.org/0000-0002-0308-4110)
- Subhashini Chandrasekharan (ORCID: https://orcid.org/0000-0002-9894-3263)
- Ilfra Goldberg
- Camille Nebecker
Institutions
- Harvard University (US)
- Johns Hopkins University (US)
- University of San Diego (US)
- Oregon Health & Science University (US)
- Simon Fraser University (CA)
- University of Oregon (US)
- University of Washington (US)
- University of South Florida (US)
- University of Florida (US)
- University of California San Diego (US)
- Human Longevity (United States) (US)
- Eagle Mount (US)
- The University of Texas Health Science Center (US)
- Vanderbilt University Medical Center (US)
- The University of Texas Health Science Center at Houston (US)
Publication Details
- Journal
- JAMIA Open
- Published
- 2025-10-09
- DOI
- https://doi.org/10.1093/jamiaopen/ooaf134
- Citations
- 1
- Primary Topic
- Scientific Computing and Data Management
- Type
- article
- Field-Weighted Citation Impact
- 4.17