Navigating end-of-life decision-making on ECLS discontinuation in children: insights from the international ENSURE survey
•The ENSURE study evaluates current viewpoints of ECLS professionals across Europe and investigates influencing respondent or institutional characteristics. •Guidelines for managing ECLS patients considering regional, religious, and cultural factors could reduce variability in treatment and mental distress in decision-making.
Authors
- Janet Kelly (ORCID: https://orcid.org/0000-0002-1093-4822)
- Angelo Polito (ORCID: https://orcid.org/0000-0003-4686-726X)
- Joe Brierley (ORCID: https://orcid.org/0000-0003-0919-6882)
- Ravi R. Thiagarajan (ORCID: https://orcid.org/0000-0002-4154-1693)
- Alexander Supady (ORCID: https://orcid.org/0000-0003-4056-3652)
- Justyna Swol (ORCID: https://orcid.org/0000-0002-2903-092X)
- Aparna U. Hoskote (ORCID: https://orcid.org/0000-0003-4760-1199)
- Marcel Fleig (ORCID: https://orcid.org/0000-0002-0831-7884)
- Heidi J. Dalton (ORCID: https://orcid.org/0000-0001-9443-3533)
Institutions
- Creighton University (US)
- Boston Children's Hospital (US)
- University of Zurich (CH)
- Paracelsus Medical University (AT)
- Great Ormond Street Hospital (GB)
- Maastricht University Medical Centre (NL)
- Great Ormond Street Hospital for Children NHS Foundation Trust (GB)
- University Medical Center Freiburg (DE)
- Maastricht University (NL)
- University Hospital of Geneva (CH)
- Paracelsus Medizinische Privatuniversität (DE)
- University Children's Hospital Zurich (CH)
- NIHR Great Ormond Street Hospital Biomedical Research Centre (GB)
- University College London (GB)
Publication Details
- Journal
- European Journal of Pediatrics
- Published
- 2025-12-02
- DOI
- https://doi.org/10.1007/s00431-025-06629-0
- Primary Topic
- Gastroesophageal reflux and treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00