Data accuracy in the European Cystic Fibrosis Society Patient Registry: results of an on-site data validation project

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Publication Details

Journal
Orphanet Journal of Rare Diseases
Published
2025-12-02
DOI
https://doi.org/10.1186/s13023-025-04153-w
Primary Topic
Cystic Fibrosis Research Advances
Type
article
Field-Weighted Citation Impact
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article

Data accuracy in the European Cystic Fibrosis Society Patient Registry: results of an on-site data validation project

Lutz Naehrlich, Kathryn Marko, Fox Alice, S. Mayor et al.
Orphanet Journal of Rare Diseases
Cystic Fibrosis Research Advances
article

Data accuracy in the European Cystic Fibrosis Society Patient Registry: results of an on-site data validation project

Lutz Naehrlich, Kathryn Marko, Fox Alice, S. Mayor, Wollscheid Nadine, Prasad Vibha, Zolin Anna
article en

Abstract

No abstract available for this paper.
Orphanet Journal of Rare DiseasesVol. 20(1)
University of Milan (IT), Johannes Gutenberg University Mainz (DE), Justus-Liebig-Universität Gießen (DE), University Medical Center of the Johannes Gutenberg University Mainz (DE), Fundación Española de la Nutrición (ES), University Children's Hospital Zurich (CH), University of Milano-Bicocca (IT)
Openalex Percentile: Top 44%
Cystic Fibrosis Research Advances
DOIOpen Access PDFOpenAlex
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