Abstract 22: Kenya Palliative Care Providers and Leaders Perception of Palliative Care Research Needs and Support to Facilitate Vigorous Research

Abstract Purpose: Palliative care is an approach that reduces symptom distress and improve quality of life for patients and their families experiencing life-threatening illness. While the need for palliative care (PC) in Kenya is high, PC service delivery and research is limited. Qualitative research is needed to explore potential areas for PC research and support needed to enable that research. This insight is critical for informing a national PC research agenda and mobilizing limited resources for conducting rigorous PC research in Kenya. Methods: This study explored perceptions of priority areas for PC research and support needed to facilitate rigorous research from the perspective of Kenyan PC providers and leaders. Focus groups (FGs) were conducted in November and December of 2018 during the National Palliative Care Conference using a semi-structured interview guide. FGs were audio-recorded, transcribed, and analysed using a thematic content analysis approach. Three FGs were conducted (n = 22 participants). Results: The following themes emerged: 1) beliefs about death, disease, and treatment to inform PC; 2) awareness about PC, 3) integration of PC within the health system; 4) understanding caregiver experiences and needs; 5) community health volunteers (CHVs) and volunteer programs; 6) evaluation of costs and benefits of PC; 7) treatment approaches, including complementary and alternative medicine (CAM) and advanced diagnostics at end of life; 8) other suggestions for research, 9) populations in need of PC research; and 10) resources for enabling research. Conclusion: Kenyan PC providers and leaders identified key areas requiring increased scientific inquiry and critical resources needed to enable this research. These findings can help to focus future PC research in Kenya and encourage funding agencies to prioritize the issues identified. Citation Format: Kathleen B. Cartmell, Emily A. Doherty, Richard Powell, Zipporah Ali, Nancy Gikaara, Ezinne Sylvia Melikam. Kenya Palliative Care Providers and Leaders Perception of Palliative Care Research Needs and Support to Facilitate Vigorous Research [abstract]. In: Proceedings of the 13th Annual Symposium on Global Cancer Research; 2025 Sep 16. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2025;34(12_Suppl):Abstract nr 22.

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Journal
Cancer Epidemiology Biomarkers & Prevention
Published
2025-12-01
DOI
https://doi.org/10.1158/1538-7755.asgcr25-abstract-22
Primary Topic
Palliative Care and End-of-Life Issues
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article
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0.00
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article

Abstract 22: Kenya Palliative Care Providers and Leaders Perception of Palliative Care Research Needs and Support to Facilitate Vigorous Research

Zipporah Ali, Kathleen B. Cartmell, Ezinne Sylvia Melikam, Emily A Doherty et al.
Cancer Epidemiology Biomarkers & Prevention
Palliative Care and End-of-Life Issues
article

Abstract 22: Kenya Palliative Care Providers and Leaders Perception of Palliative Care Research Needs and Support to Facilitate Vigorous Research

Zipporah Ali, Kathleen B. Cartmell, Ezinne Sylvia Melikam, Emily A Doherty, Nancy Gikaara, Richard A. Powell
article en

Abstract

Abstract Purpose: Palliative care is an approach that reduces symptom distress and improve quality of life for patients and their families experiencing life-threatening illness. While the need for palliative care (PC) in Kenya is high, PC service delivery and research is limited. Qualitative research is needed to explore potential areas for PC research and support needed to enable that research. This insight is critical for informing a national PC research agenda and mobilizing limited resources for conducting rigorous PC research in Kenya. Methods: This study explored perceptions of priority areas for PC research and support needed to facilitate rigorous research from the perspective of Kenyan PC providers and leaders. Focus groups (FGs) were conducted in November and December of 2018 during the National Palliative Care Conference using a semi-structured interview guide. FGs were audio-recorded, transcribed, and analysed using a thematic content analysis approach. Three FGs were conducted (n = 22 participants). Results: The following themes emerged: 1) beliefs about death, disease, and treatment to inform PC; 2) awareness about PC, 3) integration of PC within the health system; 4) understanding caregiver experiences and needs; 5) community health volunteers (CHVs) and volunteer programs; 6) evaluation of costs and benefits of PC; 7) treatment approaches, including complementary and alternative medicine (CAM) and advanced diagnostics at end of life; 8) other suggestions for research, 9) populations in need of PC research; and 10) resources for enabling research. Conclusion: Kenyan PC providers and leaders identified key areas requiring increased scientific inquiry and critical resources needed to enable this research. These findings can help to focus future PC research in Kenya and encourage funding agencies to prioritize the issues identified. Citation Format: Kathleen B. Cartmell, Emily A. Doherty, Richard Powell, Zipporah Ali, Nancy Gikaara, Ezinne Sylvia Melikam. Kenya Palliative Care Providers and Leaders Perception of Palliative Care Research Needs and Support to Facilitate Vigorous Research [abstract]. In: Proceedings of the 13th Annual Symposium on Global Cancer Research; 2025 Sep 16. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2025;34(12_Suppl):Abstract nr 22.

Cancer Epidemiology Biomarkers & PreventionVol. 34(12_Supplement)
Oklahoma State University (US), African Palliative Care Association (UG), Imperial Valley College (US), Aga Khan University Nairobi (KE), Kenya Psychiatry Association​ (KE), Imperial College London (GB), Clemson University (US)
Openalex Percentile: Top 52%
Palliative Care and End-of-Life Issues
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