Capability wellbeing of parents caring for children with rare diseases: a national cross-sectional study
Parents caring for children with rare diseases face multifaceted challenges that negatively affect their overall capability wellbeing, particularly in areas of stability, achievement, and autonomy. Gender-specific challenges call for tailored services and support for mothers and fathers.
Authors
- Richard Huan Xu (ORCID: https://orcid.org/0000-0002-4720-5172)
- Yuanqiang Zhang (ORCID: https://orcid.org/0000-0002-4592-4966)
- Jiazhou Yu (ORCID: https://orcid.org/0000-0002-9249-2721)
- Shanquan Chen (ORCID: https://orcid.org/0000-0002-4724-4892)
- Dong Dong (ORCID: https://orcid.org/0000-0001-9784-6472)
- Huanyu Zhang (ORCID: https://orcid.org/0000-0001-6480-2510)
Institutions
- Hong Kong Polytechnic University (HK)
- Sun Yat-sen University (CN)
- Chinese University of Hong Kong (HK)
- Chinese Academy of Medical Sciences & Peking Union Medical College (CN)
- Peking Union Medical College Hospital (CN)
- The Seventh Affiliated Hospital of Sun Yat-sen University (CN)
- Chinese University of Hong Kong, Shenzhen (CN)
- University of Hong Kong (HK)
Publication Details
- Journal
- BMC Public Health
- Published
- 2025-11-28
- DOI
- https://doi.org/10.1186/s12889-025-25452-8
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Chinese Academy of Medical Sciences
- Peking Union Medical College Hospital
- Foreign, Commonwealth and Development Office
- National Key Research and Development Program of China