Making Sense of Visual Hallucinations in Lewy Body Dementia for Informal Caregivers

The identified themes illustrate how caregiving within the context of LBD was marked by continual loss and ongoing psychosocial difficulties, both of which required ongoing work to manage. Although formal and informal support was crucial to helping caregivers during their experiences, this was only sometimes available and resulted in a more arduous journey. Participants provided valuable insights that may be helpful for professional practice, especially in terms of illustrating how important it is for a program of psychoeducation to be offered alongside better access to support services more broadly. Further research is needed to understand the nuances around caregiving within this context from a cross-cultural perspective.