Establishment and Analysis of the First Electronic Cystic Fibrosis Registry in Jordan: Demographic and Clinical Insights
The establishment of Jordan's CF registry offers insights into the CF population, though challenges in data standardization and completeness persist. Enhanced efforts in data collection accuracy and comprehensive documentation are essential for the registry's continued development and monitoring changes in outcomes.
Authors
- Nisreen Al-Hamiedeen
- Ahmet Uluer (ORCID: https://orcid.org/0000-0003-2335-4242)
- Sawsan Majali (ORCID: https://orcid.org/0009-0002-0537-8152)
- Mohamad Rawashdeh
- Omar Ayaad (ORCID: https://orcid.org/0000-0003-1521-117X)
- Basim Al Zubi
- Muna Kilani (ORCID: https://orcid.org/0000-0002-2798-3970)
- Mohammad Elayan Mohammad Alzoubi
- Safwan Dababneh
- Latifa Maraqa
- Eyad Altamimi (ORCID: https://orcid.org/0000-0002-9892-867X)
- Montaha Al‐Iede (ORCID: https://orcid.org/0000-0002-7554-7604)
- Raja Khater
- Ihsan Al Jundi
- Heba AboShindi
Institutions
- University of Jordan (JO)
- Boston Children's Hospital (US)
- Harvard University (US)
- Jordan University of Science and Technology (JO)
- Hashemite University (JO)
- Water Authority of Jordan (JO)
- Jordan Hospital (JO)
- King Hussein Medical Center (JO)
- Ministry of Health (JO)
- The Farah Hospital (JO)
Publication Details
- Journal
- Pediatric Pulmonology
- Published
- 2025-11-26
- DOI
- https://doi.org/10.1002/ppul.71393
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 0.00