Co-Creation of a Continuing Professional Development Toolkit focused on self-management of respiratory health issues in people with intellectual disabilities

<bold>Background:</bold> Individuals with ID (Intellectual Disabilities) are at greater risk of hospital admission or avoidable death due to respiratory associated conditions. They need self-management support from nurses to avoid this risk. Our study aimed to identify what respiratory skills and knowledge are taught to pre-registration nurses (all fields) to support individuals with ID and their carers to self-manage respiratory health conditions. <bold>Method:</bold> A Freedom of Information (FOI) request was sent to UK universities to establish if pre-registration nursing curricula covers self-management of respiratory health in individuals with ID. Priority setting workshops using Nominal Group Technique were undertaken with N=38 UK based stakeholders. These included individuals with ID (n=13), carers (n=3), professionals (n=8) and nursing students (n=14) to explore education priorities for pre-registration nursing students, to support self-management of respiratory conditions in this group. <bold>Results:</bold> The majority (N=56, 80%) of 70 universities that responded to the FOI request do not teach content focused on managing respiratory knowledge specific for people with ID. The workshops identified that student nurses need to develop an ability to use devices such as nebulizers and inhalers with people with ID. <bold>Conclusions:</bold> Enhanced respiratory health education is required for pre-registration nursing students to help carers support people with ID. These findings are being applied to inform the co-design of a CPD toolkit to enable nurses from all fields to support self-management of respiratory conditions in individuals with ID.

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Published
2025-09-27
DOI
https://doi.org/10.1183/13993003.congress-2025.pa2818
Primary Topic
Down syndrome and intellectual disability research
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article
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article

Co-Creation of a Continuing Professional Development Toolkit focused on self-management of respiratory health issues in people with intellectual disabilities

Nicola Roberts, Lisa O’Leary, Margaret Dunham, Nicola Ring et al.
Down syndrome and intellectual disability research
article

Co-Creation of a Continuing Professional Development Toolkit focused on self-management of respiratory health issues in people with intellectual disabilities

Nicola Roberts, Lisa O’Leary, Margaret Dunham, Nicola Ring, Daniel Devaprakash Dicksit
article en

Abstract

<bold>Background:</bold> Individuals with ID (Intellectual Disabilities) are at greater risk of hospital admission or avoidable death due to respiratory associated conditions. They need self-management support from nurses to avoid this risk. Our study aimed to identify what respiratory skills and knowledge are taught to pre-registration nurses (all fields) to support individuals with ID and their carers to self-manage respiratory health conditions. <bold>Method:</bold> A Freedom of Information (FOI) request was sent to UK universities to establish if pre-registration nursing curricula covers self-management of respiratory health in individuals with ID. Priority setting workshops using Nominal Group Technique were undertaken with N=38 UK based stakeholders. These included individuals with ID (n=13), carers (n=3), professionals (n=8) and nursing students (n=14) to explore education priorities for pre-registration nursing students, to support self-management of respiratory conditions in this group. <bold>Results:</bold> The majority (N=56, 80%) of 70 universities that responded to the FOI request do not teach content focused on managing respiratory knowledge specific for people with ID. The workshops identified that student nurses need to develop an ability to use devices such as nebulizers and inhalers with people with ID. <bold>Conclusions:</bold> Enhanced respiratory health education is required for pre-registration nursing students to help carers support people with ID. These findings are being applied to inform the co-design of a CPD toolkit to enable nurses from all fields to support self-management of respiratory conditions in individuals with ID.

Edinburgh Napier University (GB)
Openalex Percentile: Top 53%
Down syndrome and intellectual disability research
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Co-Creation of a Continuing Professional Development Toolkit focused on self-management of respiratory health issues in people with intellectual disabilities — Nicola Roberts, Lisa O’Leary, et al. · (2025) | TGRS Research Map | TGRS