The Experience of Paid Carers of People With Intellectual Disability in Long Term Residential Institutions: A Qualitative Study

ABSTRACT A global movement towards deinstitutionalization has driven changes in housing opportunities for individuals with intellectual disability around the world. Research about these changes has highlighted the significant role of paid caregivers and the importance of community‐based care. We present a qualitative study aimed at describing the experiences of paid caregivers for individuals with intellectual disabilities in long‐term residential institutions in Santiago, Chile. Through interviews with 15 caregivers from various institutions, we examined their motivations, challenges, and impacts of caregiving on their personal lives. Thematic Analysis was used to analyze the interviews. Four key themes were identified: (1) knowledge about intellectual disability and the persons cared for, (2) nature of the relationship with the people they assist, (3) professional caregiving roles, and (4) the personal impact of caregiving. Findings highlight the limited training of caregivers in intellectual disability, the physical and emotional burdens they face, and their crucial role in promoting residents' autonomy and community inclusion. The study highlights the need for professional recognition and support to improve the quality of care and ensure the social inclusion of individuals with intellectual disability aligned with the global deinstitutionalization movement.