Patient and Caregiver Perspectives on Clinical Care, Comprehensive Support, and Communication in Langerhans Cell Histiocytosis Management

These patient and caregiver perspectives provide opportunities to improve the experience of individuals with LCH throughout diagnosis, treatment, and surveillance. These accounts should be heavily considered when developing, altering, or customizing treatment plans for patients with LCH moving forward.

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Publication Details

Journal
Pediatric Blood & Cancer
Published
2025-11-24
DOI
https://doi.org/10.1002/mpo.70010
Primary Topic
Histiocytic Disorders and Treatments
Type
article
Field-Weighted Citation Impact
0.00
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article

Patient and Caregiver Perspectives on Clinical Care, Comprehensive Support, and Communication in Langerhans Cell Histiocytosis Management

Jeffrey G. Edwards, Michael Jeng, Tishi Shah
Pediatric Blood & Cancer
Histiocytic Disorders and Treatments
article

Patient and Caregiver Perspectives on Clinical Care, Comprehensive Support, and Communication in Langerhans Cell Histiocytosis Management

Jeffrey G. Edwards, Michael Jeng, Tishi Shah
article en

Abstract

These patient and caregiver perspectives provide opportunities to improve the experience of individuals with LCH throughout diagnosis, treatment, and surveillance. These accounts should be heavily considered when developing, altering, or customizing treatment plans for patients with LCH moving forward.

Pediatric Blood & CancerVol. 73(2)
Boston Children's Hospital (US), Lucile Packard Children's Hospital (US), Harvard University (US), Dana-Farber/Boston Children's Cancer and Blood Disorders Center (US)
Openalex Percentile: Top 56%
Histiocytic Disorders and Treatments
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