Experiences of women of childbearing age with epilepsy throughout their motherhood journey: Results from a social media listening study
WWE want to be empowered through knowledge and need support in finding relevant information at the right time in their motherhood journey to increase their confidence in shared decision making. Often, information is not provided by clinicians or is difficult to obtain. WWE receive conflicting information, while questions remain unanswered, leading to confusion/heightened anxiety. WWE seek answers from sources other than HCPs, including peers. WWE and families need better support; providing relevant plain-language information at the right stage would enable a more informed motherhood journey experience.
Authors
- Konrad J. Werhahn
- Aisa Manzo
- Gus A. Baker (ORCID: https://orcid.org/0000-0002-5736-605X)
- Tykeia Robinson (ORCID: https://orcid.org/0009-0006-8513-5079)
- Dimitrios Bourikas (ORCID: https://orcid.org/0009-0005-4503-0734)
- Madelynn D. Shell (ORCID: https://orcid.org/0000-0003-3316-2025)
- Andrea Wilkinson
- Jessica K. Smith
- Agnes Koncz
Institutions
- Atkins (United States) (US)
- University of Piraeus (GR)
- International Center for Research on Women (US)
- Epilepsy Research UK (GB)
- UCB Pharma (United States) (US)
- Epilepsy Action (GB)
- UCB Pharma (Germany) (DE)
- UCB Pharma (Belgium) (BE)
Publication Details
- Journal
- Epilepsy & Behavior
- Published
- 2025-11-21
- DOI
- https://doi.org/10.1016/j.yebeh.2025.110799
- Primary Topic
- Pharmacological Effects and Toxicity Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- American Epilepsy Society
- Epilepsy Society