Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals

Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support.

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Publication Details

Journal
Intellectual and developmental disabilities
Published
2025-11-24
DOI
https://doi.org/10.1352/1934-9556-63.6.498
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
0.00
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article

Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals

Catherine K. Arnold, Meghan M. Burke, Chak Li
Intellectual and developmental disabilities
Family and Disability Support Research
article

Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals

Catherine K. Arnold, Meghan M. Burke, Chak Li
article en

Abstract

Extensive research has focused on parent advocacy, but the advocacy efforts of siblings of autistic individuals remain less studied. This study aims to identify the correlates of individual and systemic advocacy among siblings of autistic individuals. Using a national survey, 256 adult siblings of autistic individuals indicated their advocacy activities. Descriptive statistics and hierarchical regressions were used for analyses. Results indicated that, although siblings often engaged in both individual and systemic advocacy, they present as distinct constructs with varying correlates. Older siblings who engaged in future planning and/or were knowledgeable about disability policy were more likely to conduct individual advocacy. Systemic advocacy was greater among siblings more connected to the disability community and had reciprocal exchanges of tangible support.

Intellectual and developmental disabilitiesVol. 63(6)
Vanderbilt University (US), University of Illinois Chicago (US)
Openalex Percentile: Top 52%
Family and Disability Support Research
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Correlates of Individual and Systemic Advocacy Activities Among Siblings of Autistic Individuals — Catherine K. Arnold, Meghan M. Burke, et al. · Intellectual and developmental disabilities (2025) | TGRS Research Map | TGRS