Family Life and the Integration of Care of a Child With Neurodevelopmental Disability: Parental Experiences and Predictive Factors of Family Functioning, Adjustment and Understanding Disability
This study advances our understanding of family life with disability by examining key factors shaping the experience of caring for children with complex needs across various neurodevelopmental disorders. Our findings provide a broader perspective than previous condition-specific research, highlighting the multifaceted nature of family experiences in disability care. This comprehensive view can inform more effective support strategies for families throughout their child's developmental journey, emphasising the importance of considering family functioning, adjustment and management beyond individual diagnoses.
Authors
- Daisy A. Shepherd (ORCID: https://orcid.org/0000-0001-8540-0473)
- Hanh Tu Duc Nguyen (ORCID: https://orcid.org/0000-0001-9747-7611)
- Gordon Baikie (ORCID: https://orcid.org/0000-0002-0749-0220)
- M. Yates (ORCID: https://orcid.org/0009-0002-2364-9702)
- Anna Bornemisza (ORCID: https://orcid.org/0000-0002-3328-4375)
- Lyndal Hickey (ORCID: https://orcid.org/0000-0001-6418-4935)
- Ingrid Sutherland (ORCID: https://orcid.org/0000-0002-2841-4542)
- Ana Lucía (ORCID: https://orcid.org/0009-0007-5584-2220)
Institutions
- Royal Children's Hospital (AU)
- The University of Melbourne (AU)
- Murdoch Children's Research Institute (AU)
Publication Details
- Journal
- Child Care Health and Development
- Published
- 2025-11-01
- DOI
- https://doi.org/10.1111/cch.70172
- Citations
- 2
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 4.61