Your pain and mine: the mismatch between pain expression and perception of patients with sickle cell disease in the UK
As someone with lived experience of SCD who has held roles as a researcher and an advocate, this study has made me more driven to put patient voices within published literature because service provision, in any setting, which is not informed by patient experiences, will continue to miss the needs of the users.
Authors
- Deborah Padfield (ORCID: https://orcid.org/0000-0002-7805-1815)
- Alison Swartz (ORCID: https://orcid.org/0000-0002-4021-9838)
- Ayesha Ahmad (ORCID: https://orcid.org/0000-0003-0754-3772)
- Fejiro Okagbare (ORCID: https://orcid.org/0009-0001-7400-2282)
Institutions
- St George's, University of London (GB)
- City St George's, University of London (GB)
- Keele University (GB)
Publication Details
- Journal
- Medical Humanities
- Published
- 2025-11-20
- DOI
- https://doi.org/10.1136/medhum-2025-013243
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00