Dementia Data Landscape 1. Cohorts
A total of 883 cohorts were identified globally (1970 to 2024): 558 population and 325 clinical The Global South is substantially underrepresented Seventy-four percent of cohorts offer data access, but protocols and metadata quality vary widely Only 45% of cohorts were discoverable via existing data platforms The online landscape tool enables strategic discovery and reuse of dementia data.
Authors
- Emma Squires (ORCID: https://orcid.org/0000-0003-0693-5846)
- John Gallacher (ORCID: https://orcid.org/0000-0003-1292-8079)
- Sarah Bauermeister (ORCID: https://orcid.org/0000-0001-9463-6971)
- Benjamin Tari (ORCID: https://orcid.org/0000-0003-3751-3179)
- Joshua Bauermeister (ORCID: https://orcid.org/0000-0002-9154-1392)
- Antony Morgan (ORCID: https://orcid.org/0000-0002-6055-4772)
- Simon Au Young
- Conor Durkin
Institutions
- Swansea University (GB)
- Dementias Platform UK (GB)
Publication Details
- Journal
- Alzheimer s & Dementia
- Published
- 2025-11-01
- DOI
- https://doi.org/10.1002/alz.70901
- Primary Topic
- Dementia and Cognitive Impairment Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Medical Research Council