Ethical nursing strategies for ART in intellectual disability: tools and systemic pathways

BackgroundThe use of assisted reproductive technology (ART) in individuals with intellectual disabilities raises significant ethical tensions between reproductive autonomy and the welfare of future offspring. Global guidelines addressing this dilemma remain absent. In China, nurses frequently encounter these dual responsibilities without clear operational frameworks.AimTo explore how nursing interventions can support ethical decision-making and reproductive safety for an intellectually disabled patient undergoing ART.DesignA qualitative, exploratory single-case study.MethodsThe study followed a 27-year-old woman with mild intellectual disability through an in vitro fertilization (IVF) pathway. A nurse-led dual-intervention strategy was implemented: (1) cognitively adaptive decision-making tools (pictogram-based IVF guides, emoji risk charts, visual medication calendars); and (2) government-integrated perinatal care services, including prenatal registration, structured follow-up, and postpartum home visits.Ethical ConsiderationsEthical approval was obtained, and the study adhered to strict ethical standards, including a tailored informed consent process and robust guarantees of confidentiality.FindingsThe intervention ensured informed consent completion, medication adherence without errors, and comprehensive prenatal tracking via the national maternal health system. The patient delivered a healthy infant (Apgar score = 10). These outcomes demonstrate that nurse-designed cognitive adaptations, combined with systemic safeguards, enhance patient autonomy and reproductive safety.ConclusionThis study illustrates an ethical and practical paradigm for reconciling reproductive justice and cognitive equity in ART. Nurse-led innovations, supported by institutional governance, may inform global frameworks for ethically complex fertility care.

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Publication Details

Journal
Nursing Ethics
Published
2025-11-20
DOI
https://doi.org/10.1177/09697330251393356
Primary Topic
Prenatal Screening and Diagnostics
Type
article
Field-Weighted Citation Impact
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article

Ethical nursing strategies for ART in intellectual disability: tools and systemic pathways

Ni Tang, Bingling Zhao, Wenjie Huang, Fengying Zhang et al.
Nursing Ethics
Prenatal Screening and Diagnostics
article

Ethical nursing strategies for ART in intellectual disability: tools and systemic pathways

Ni Tang, Bingling Zhao, Wenjie Huang, Fengying Zhang, Wei Jia, Lan-Zhi Wei
article en

Abstract

BackgroundThe use of assisted reproductive technology (ART) in individuals with intellectual disabilities raises significant ethical tensions between reproductive autonomy and the welfare of future offspring. Global guidelines addressing this dilemma remain absent. In China, nurses frequently encounter these dual responsibilities without clear operational frameworks.AimTo explore how nursing interventions can support ethical decision-making and reproductive safety for an intellectually disabled patient undergoing ART.DesignA qualitative, exploratory single-case study.MethodsThe study followed a 27-year-old woman with mild intellectual disability through an in vitro fertilization (IVF) pathway. A nurse-led dual-intervention strategy was implemented: (1) cognitively adaptive decision-making tools (pictogram-based IVF guides, emoji risk charts, visual medication calendars); and (2) government-integrated perinatal care services, including prenatal registration, structured follow-up, and postpartum home visits.Ethical ConsiderationsEthical approval was obtained, and the study adhered to strict ethical standards, including a tailored informed consent process and robust guarantees of confidentiality.FindingsThe intervention ensured informed consent completion, medication adherence without errors, and comprehensive prenatal tracking via the national maternal health system. The patient delivered a healthy infant (Apgar score = 10). These outcomes demonstrate that nurse-designed cognitive adaptations, combined with systemic safeguards, enhance patient autonomy and reproductive safety.ConclusionThis study illustrates an ethical and practical paradigm for reconciling reproductive justice and cognitive equity in ART. Nurse-led innovations, supported by institutional governance, may inform global frameworks for ethically complex fertility care.

Nursing EthicsVol. 33(2)
Gynecologic Oncology Group (US), Guangxi University of Science and Technology (CN), Liuzhou Maternal and Child Health Hospital (CN), Guangzhou Women and Children Medical Center (CN), Guangdong Province Women and Children Hospital (CN), Center for Clinical Research (United States) (US), Guangzhou Medical University (CN)
Openalex Percentile: Top 53%
Prenatal Screening and Diagnostics
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