Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary

Engaging youth as advisors in health research and service delivery is a rapidly growing practice, yet there are no consistent frameworks or ethical guidelines available to ensure the protection of this vulnerable population from unintended harm. This commentary aims to bring awareness to 3 ethical complexities observed in the authors' own participation within the field of youth engagement in health research and service delivery: (1) a lack of standardized safeguards for youth advisors, (2) a lack of accountability for the safety of youth advisors, and (3) the need to cater engagement activities to the development and well-being of youth. Further, recommendations for meaningfully engaging youth advisors are proposed with the aim of ensuring their safety and enabling opportunities to drive impactful outcomes in health care.

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Publication Details

Journal
Journal of Patient Experience
Published
2025-11-01
DOI
https://doi.org/10.1177/23743735251399981
Citations
1
Primary Topic
Adolescent and Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
3.12
Controls
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article

Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary

Brooke Allemang, Jeanna Pillainayagam, Alexa Petta
1 citations
Journal of Patient Experience
Adolescent and Pediatric Healthcare
3.12
article

Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary

Brooke Allemang, Jeanna Pillainayagam, Alexa Petta
article en
1 citations

Abstract

Engaging youth as advisors in health research and service delivery is a rapidly growing practice, yet there are no consistent frameworks or ethical guidelines available to ensure the protection of this vulnerable population from unintended harm. This commentary aims to bring awareness to 3 ethical complexities observed in the authors' own participation within the field of youth engagement in health research and service delivery: (1) a lack of standardized safeguards for youth advisors, (2) a lack of accountability for the safety of youth advisors, and (3) the need to cater engagement activities to the development and well-being of youth. Further, recommendations for meaningfully engaging youth advisors are proposed with the aim of ensuring their safety and enabling opportunities to drive impactful outcomes in health care.

Journal of Patient ExperienceVol. 12
University of Toronto (CA), Hospital for Sick Children (CA), SickKids Foundation (CA), McMaster University (CA)
Openalex Percentile: Top 7%
Adolescent and Pediatric Healthcare
3.12
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