Sexual Orientation and Gender Identity Data in Oncology: Thematic Analysis From a National Qualitative Interview Study
Key themes included: (1) barriers to SOGI data collection include stigma and bias, generational and geopolitical resistance, fragmented workflows, competing priorities and institutional inertia; (2) the importance of staff exposure to lesbian, gay, bisexual, queer, and intersex (LGBTQI) individuals in understanding SOGI's clinical relevance; and (3) structural challenges to equitable care for transgender patients, including electronic health record (EHR) limitations and billing issues. Taken together, these findings reveal a complex interplay of sociocultural, institutional, and systemic barriers that impede routine SOGI data collection in cancer care.
Authors
- Mandi L. Pratt‐Chapman (ORCID: https://orcid.org/0000-0002-9303-7659)
- D Rosenberg (ORCID: https://orcid.org/0009-0003-9447-4687)
- Charles Stewart Kamen (ORCID: https://orcid.org/0000-0002-4219-4320)
- Edward J. Miech (ORCID: https://orcid.org/0000-0002-7187-1570)
- Megan A. Mullins (ORCID: https://orcid.org/0000-0003-2753-9068)
- Beck Gold
- Milena E. Insalaco
Institutions
- George Washington University (US)
- University of Rochester Medical Center (US)
- Southwestern Medical Center (US)
- Indiana University – Purdue University Indianapolis (US)
- The University of Texas Southwestern Medical Center (US)
Publication Details
- Journal
- Cancer Medicine
- Published
- 2025-11-01
- DOI
- https://doi.org/10.1002/cam4.71360
- Primary Topic
- LGBTQ Health, Identity, and Policy
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- NRG Oncology
- National Cancer Institute