Including People With Lived Experience in Research From Design to Publication: The Next Steps for the IJIC Community
In a recent article by Michgelsen et al. (2025) [1], a key insight emerged from a decade of research published in the International Journal of Integrated Care (IJIC): while the ambition to co-produce integrated care with people is widely stated, the reality often reflects a top-down approach of integrated care onto individuals.This discrepancy is not limited to practice and policy-it permeates the research landscape as well.The resulting gap risks producing research that does not respond to the users' needs and fails to generate the evidence required to create truly person-centred care.In this editorial, we aim to highlight the challenges and opportunities of co-producing research with people with lived experience, drawing on discussions and outcomes from a workshop held at ICIC25 and the longer journey IJIC has been on for the past 3 years.
Authors
- K. Viktoria Stein (ORCID: https://orcid.org/0000-0002-6225-6226)
- Edelweiss Aldasoro (ORCID: https://orcid.org/0000-0002-3719-3622)
- Robin Miller (ORCID: https://orcid.org/0000-0003-2646-5589)
- Michelle Nelson (ORCID: https://orcid.org/0000-0003-2002-0298)
- Eskil Degsell (ORCID: https://orcid.org/0009-0001-8764-628X)
Institutions
- Partners In Care (US)
- Swedish Asthma and Allergy Association (SE)
- International Foundation for Integrated Care (GB)
- Bruyère (CA)
- University of Birmingham (GB)
Publication Details
- Journal
- International Journal of Integrated Care
- Published
- 2025-11-20
- DOI
- https://doi.org/10.5334/ijic.10240
- Primary Topic
- Academic Publishing and Open Access
- Type
- article
- Field-Weighted Citation Impact
- 0.00