Including People With Lived Experience in Research From Design to Publication: The Next Steps for the IJIC Community

In a recent article by Michgelsen et al. (2025) [1], a key insight emerged from a decade of research published in the International Journal of Integrated Care (IJIC): while the ambition to co-produce integrated care with people is widely stated, the reality often reflects a top-down approach of integrated care onto individuals.This discrepancy is not limited to practice and policy-it permeates the research landscape as well.The resulting gap risks producing research that does not respond to the users' needs and fails to generate the evidence required to create truly person-centred care.In this editorial, we aim to highlight the challenges and opportunities of co-producing research with people with lived experience, drawing on discussions and outcomes from a workshop held at ICIC25 and the longer journey IJIC has been on for the past 3 years.

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Publication Details

Journal
International Journal of Integrated Care
Published
2025-11-20
DOI
https://doi.org/10.5334/ijic.10240
Primary Topic
Academic Publishing and Open Access
Type
article
Field-Weighted Citation Impact
0.00
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article

Including People With Lived Experience in Research From Design to Publication: The Next Steps for the IJIC Community

K. Viktoria Stein, Edelweiss Aldasoro, Robin Miller, Michelle Nelson et al.
International Journal of Integrated Care
Academic Publishing and Open Access
article

Including People With Lived Experience in Research From Design to Publication: The Next Steps for the IJIC Community

K. Viktoria Stein, Edelweiss Aldasoro, Robin Miller, Michelle Nelson, Eskil Degsell
article en

Abstract

In a recent article by Michgelsen et al. (2025) [1], a key insight emerged from a decade of research published in the International Journal of Integrated Care (IJIC): while the ambition to co-produce integrated care with people is widely stated, the reality often reflects a top-down approach of integrated care onto individuals.This discrepancy is not limited to practice and policy-it permeates the research landscape as well.The resulting gap risks producing research that does not respond to the users' needs and fails to generate the evidence required to create truly person-centred care.In this editorial, we aim to highlight the challenges and opportunities of co-producing research with people with lived experience, drawing on discussions and outcomes from a workshop held at ICIC25 and the longer journey IJIC has been on for the past 3 years.

International Journal of Integrated CareVol. 25(4)
Partners In Care (US), Swedish Asthma and Allergy Association (SE), International Foundation for Integrated Care (GB), Bruyère (CA), University of Birmingham (GB)
Openalex Percentile: Top 66%
Academic Publishing and Open Access
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