Increasing Cystic Fibrosis Knowledge of Parents of Children Diagnosed With the Newborn Screening Program
The study highlights the need for a more robust educational framework to equip parents with comprehensive knowledge about CF. Improved communication strategies about NBS processes and repeated educational interventions are necessary to address knowledge gaps and enhance the quality of life for CF patients and their families.
Authors
- Haluk Cezmi Çokuğraş (ORCID: https://orcid.org/0000-0002-0086-3936)
- Saniye Girit
- Merve Selçuk (ORCID: https://orcid.org/0000-0002-2146-3966)
- Ceren Ayça Yıldız (ORCID: https://orcid.org/0000-0003-1964-4263)
- Yasemi̇n Gökdemi̇r (ORCID: https://orcid.org/0000-0002-0853-7932)
- Şeyda Karabulut (ORCID: https://orcid.org/0000-0002-4606-8946)
- Hüseyin Arslan (ORCID: https://orcid.org/0000-0001-9474-7372)
- Fazi̇let Karakoç (ORCID: https://orcid.org/0000-0001-8518-4715)
- Erkan Çakır (ORCID: https://orcid.org/0000-0002-1438-7854)
- Burcu Uzunoğlu (ORCID: https://orcid.org/0009-0004-3994-4399)
- Mine Kalyoncu (ORCID: https://orcid.org/0000-0002-4594-2822)
- Ela Erdem Eralp (ORCID: https://orcid.org/0000-0001-8829-3431)
- Sinem Can Oksay (ORCID: https://orcid.org/0000-0001-9801-3181)
- Bulent Taner Karadag (ORCID: https://orcid.org/0000-0003-0605-8871)
- Azer Kılıç Başkan (ORCID: https://orcid.org/0000-0002-7600-7909)
- Pınar Ergenekon (ORCID: https://orcid.org/0000-0003-0228-9832)
- Ayşe Kılınç Sakallı
- Neval Meti̇n Çakar (ORCID: https://orcid.org/0000-0001-7943-0967)
- Gamze Taştan
Institutions
- Dr Lütfi Kırdar Kartal Eğitim ve Araştırma Hastanesi (TR)
- Istanbul University-Cerrahpaşa (TR)
- Istinye University (TR)
- Istanbul Medeniyet University (TR)
- Marmara University (TR)
Publication Details
- Journal
- Pediatric Pulmonology
- Published
- 2025-11-01
- DOI
- https://doi.org/10.1002/ppul.71392
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- American Thoracic Society