A scientometric review of health data sharing for secondary use: Insights, frontiers and the path ahead
Ethical governance, transparency and community engagement are central to advancing health data sharing. Building public trust and securing a social licence are foundational to success, especially as challenges around consent, data linkage and public perception remain.Implications for health information management practice:This analysis provides insight into public willingness to share health data for secondary data use and offers guidance for fostering a strong social licence while building public trust. Strengthening these trust and engagement frameworks is vital to achieving ethical data use and maximising the potential health system benefits of secondary data use.
Authors
- Rebekah Eden (ORCID: https://orcid.org/0000-0002-6228-7241)
- Michelle Krahe (ORCID: https://orcid.org/0000-0002-3223-7825)
- Leanna Woods (ORCID: https://orcid.org/0000-0003-4811-4608)
- Amalie Dyda (ORCID: https://orcid.org/0000-0003-2806-4834)
- Nalini Pather (ORCID: https://orcid.org/0000-0001-5288-7713)
- Elton H. Lobo (ORCID: https://orcid.org/0000-0003-0096-6318)
- Bernadette Richards (ORCID: https://orcid.org/0000-0001-6448-4954)
- Jason D. Pole (ORCID: https://orcid.org/0000-0002-0413-5434)
- Clair Sullivan
- Quita Olsen (ORCID: https://orcid.org/0009-0007-1451-8408)
Institutions
- The University of Queensland (AU)
- UNSW Sydney (AU)
- James Cook University (AU)
Publication Details
- Journal
- Health Information Management Journal
- Published
- 2025-11-20
- DOI
- https://doi.org/10.1177/18333583251393431
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00