Rare disease education in medical schools: patient-centered and innovative strategies

Patient panels improved students' understanding of the RD patient experience. Beyond patient panels, effective approaches in RD education in undergraduate medical curricula included lectures, case studies, role-playing simulations, artificial intelligence, and more. The authors hope medical schools will continue to implement RD education into their curricula.

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Publication Details

Journal
Orphanet Journal of Rare Diseases
Published
2025-11-20
DOI
https://doi.org/10.1186/s13023-025-03771-8
Primary Topic
Genomics and Rare Diseases
Type
article
Field-Weighted Citation Impact
0.00
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article

Rare disease education in medical schools: patient-centered and innovative strategies

Eric L. Wan, Nada Yazigi, Scott C Dorris, Angelette Pham et al.
Orphanet Journal of Rare Diseases
Genomics and Rare Diseases
article

Rare disease education in medical schools: patient-centered and innovative strategies

Eric L. Wan, Nada Yazigi, Scott C Dorris, Angelette Pham, Jessica M. Jones, Robin Yoon, Sharon Huynh
article en

Abstract

Patient panels improved students' understanding of the RD patient experience. Beyond patient panels, effective approaches in RD education in undergraduate medical curricula included lectures, case studies, role-playing simulations, artificial intelligence, and more. The authors hope medical schools will continue to implement RD education into their curricula.

Orphanet Journal of Rare DiseasesVol. 20(1)
Georgetown University (US), MedStar Heart & Vascular Institute (US)
Openalex Percentile: Top 63%
Genomics and Rare Diseases
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Rare disease education in medical schools: patient-centered and innovative strategies — Eric L. Wan, Nada Yazigi, et al. · Orphanet Journal of Rare Diseases (2025) | TGRS Research Map | TGRS