Quality of Life in Port-Wine Stains of Children and Their Parents

Port-wine stain (PWS) is a congenital capillary malformation that does not resolve spontaneously, causing physical and psychological burdens to patients. In this study, we used the Pediatric Dermatologic Quality of Life Index Questionnaire, PedsQL, and the Family Dermatologic Quality of Life Index Questionnaire to evaluate the impact of PWS on the quality of life of children and their parents. TThe results revealed a significant positive correlation between the quality of life of both children with PWS and their parents. An increasing number of PWS photodynamic treatments negatively affected the quality of life of affected children. Patient age was positively associated with parental quality of life, and it had a greater effect on mothers’ vs fathers’ quality of life. In conclusion, the impact of PWS on the quality of life of patients and their parents was clinically significant and significantly affected by treatment.