Measuring disease-specific quality of life in pediatric intestinal failure: Development and validation of the PIF-QoL
Initial empirical testing and psychometric evaluation of the PIF-QoL support its use as a practical, valid, and reliable tool for assessing self- and proxy-reported QoL of patients with PIF.
Authors
- Swapna Kakani (ORCID: https://orcid.org/0000-0002-0359-7231)
- Amy Ladner
- David F. Mercer (ORCID: https://orcid.org/0000-0003-1557-1773)
- Jessica Y. Allen (ORCID: https://orcid.org/0000-0003-4398-2449)
- Meghan Hall Rauen
- Marie L. Neumann (ORCID: https://orcid.org/0000-0003-0971-2517)
Institutions
- Nebraska Medical Center (US)
- University of Nebraska Medical Center (US)
- Athens State University (US)
- University of Alabama in Huntsville (US)
Publication Details
- Journal
- Intestinal failure.
- Published
- 2025-10-01
- DOI
- https://doi.org/10.1016/j.intf.2025.100324
- Primary Topic
- Clinical Nutrition and Gastroenterology
- Type
- article
- Field-Weighted Citation Impact
- 0.00