How Patients With Amyotrophic Lateral Sclerosis Perceive Respiratory Interventions
Patients in the first year after ALS diagnosis have variable receptiveness to respiratory care. These patients place different weights on the factors supporting NIV and may have different educational needs about respiratory interventions. Implementation strategies for respiratory care interventions in ALS should consider patients' motivations for adopting interventions such as NIV, provide multiple educational formats, and identify barriers to incorporating home respiratory care.
Authors
- Terry Heiman‐Patterson (ORCID: https://orcid.org/0000-0002-9910-1041)
- Piera Pasinelli (ORCID: https://orcid.org/0000-0002-3385-2707)
- Meghan Brooks Lane-Fall (ORCID: https://orcid.org/0000-0001-7050-0017)
- Zachary Simmons (ORCID: https://orcid.org/0000-0001-8574-5332)
- Jason Ackrivo (ORCID: https://orcid.org/0000-0003-4379-1255)
- Steven M. Kawut (ORCID: https://orcid.org/0000-0001-7896-0608)
- Lauren Elman (ORCID: https://orcid.org/0000-0003-4706-950X)
- John Hansen‐Flaschen (ORCID: https://orcid.org/0000-0003-1989-7244)
- D. P. Bracy (ORCID: https://orcid.org/0009-0009-2603-0025)
Institutions
- Thomas Jefferson University (US)
- University of Pennsylvania (US)
- Penn State Milton S. Hershey Medical Center (US)
- Temple University (US)
Publication Details
- Journal
- Neurology Clinical Practice
- Published
- 2025-11-10
- DOI
- https://doi.org/10.1212/cpj.0000000000200560
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00