A UK study of the experiences, information needs and attitudes to clinical research among patients living with secondary breast cancer in the UK: A prospective co-developed study

This is the largest UK prospective study in regards to the views of MBC patients towards research. It demonstrates keenness to be involved in research, but participants face barriers as well as a lack of opportunity for participation. Key messages include importance of clinical staff in providing research information, need to develop patient accessible information, and to support travel costs. Improvements within the UK health care system are necessary to enable MBC patients to have equitable access to clinical research.

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Publication Details

Journal
The Breast
Published
2025-11-16
DOI
https://doi.org/10.1016/j.breast.2025.104644
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
0.00

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article

A UK study of the experiences, information needs and attitudes to clinical research among patients living with secondary breast cancer in the UK: A prospective co-developed study

Nada Elbeltagi, Claire Balmer, Sophie Gasson, Janet Dunn et al.
The Breast
Ethics in Clinical Research
article

A UK study of the experiences, information needs and attitudes to clinical research among patients living with secondary breast cancer in the UK: A prospective co-developed study

Nada Elbeltagi, Claire Balmer, Sophie Gasson, Janet Dunn, Ellen Copson, Lesley Stephen, Carlo Palmieri
article en

Abstract

This is the largest UK prospective study in regards to the views of MBC patients towards research. It demonstrates keenness to be involved in research, but participants face barriers as well as a lack of opportunity for participation. Key messages include importance of clinical staff in providing research information, need to develop patient accessible information, and to support travel costs. Improvements within the UK health care system are necessary to enable MBC patients to have equitable access to clinical research.

The BreastVol. 85
Clatterbridge Cancer Centre NHS Foundation Trust (GB), University of Warwick (GB), Maudsley Charity (GB), University of Southampton (GB)
Royal Marsden NHS Foundation Trust, National Institute for Health and Care Research
Openalex Percentile: Top 55%
Ethics in Clinical Research
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A UK study of the experiences, information needs and attitudes to clinical research among patients living with secondary breast cancer in the UK: A prospective co-developed study — Nada Elbeltagi, Claire Balmer, et al. · The Breast (2025) | TGRS Research Map | TGRS