A UK study of the experiences, information needs and attitudes to clinical research among patients living with secondary breast cancer in the UK: A prospective co-developed study
This is the largest UK prospective study in regards to the views of MBC patients towards research. It demonstrates keenness to be involved in research, but participants face barriers as well as a lack of opportunity for participation. Key messages include importance of clinical staff in providing research information, need to develop patient accessible information, and to support travel costs. Improvements within the UK health care system are necessary to enable MBC patients to have equitable access to clinical research.
Authors
- Nada Elbeltagi
- Claire Balmer (ORCID: https://orcid.org/0000-0002-6650-5736)
- Sophie Gasson (ORCID: https://orcid.org/0000-0003-4648-5229)
- Janet Dunn (ORCID: https://orcid.org/0000-0001-7313-4446)
- Ellen Copson (ORCID: https://orcid.org/0000-0001-8994-4056)
- Lesley Stephen
- Carlo Palmieri
Institutions
- Clatterbridge Cancer Centre NHS Foundation Trust (GB)
- University of Warwick (GB)
- Maudsley Charity (GB)
- University of Southampton (GB)
Publication Details
- Journal
- The Breast
- Published
- 2025-11-16
- DOI
- https://doi.org/10.1016/j.breast.2025.104644
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Royal Marsden NHS Foundation Trust
- National Institute for Health and Care Research