Living with Transthyretin amyloid cardiomyopathy from a patient perspective
This qualitative study explores aspects of the ATTR-CM patient experience not captured through conventional clinical pathways. Diagnostic delays appeared to be driven by non-specialist provider knowledge gaps and systemic disparities in access to specialized care. These preliminary insights may inform the design of multidisciplinary care models that better reflect patient needs and priorities.
Authors
- Cheryl P. Anderson (ORCID: https://orcid.org/0000-0002-1903-4484)
- Julia McCain (ORCID: https://orcid.org/0000-0002-3443-8807)
- Borsika Adrienn Rabin (ORCID: https://orcid.org/0000-0001-9837-7866)
- Marcus A. Urey (ORCID: https://orcid.org/0000-0001-8311-5003)
- Cinnamon S. Bloss (ORCID: https://orcid.org/0000-0003-1315-8387)
- ERIC D. ADLER (ORCID: https://orcid.org/0000-0002-4765-0188)
- Larry A. Allen (ORCID: https://orcid.org/0000-0003-2540-3095)
- Quan M. Bui (ORCID: https://orcid.org/0000-0003-0753-8973)
Institutions
- University of California San Diego (US)
- Human Longevity (United States) (US)
- University of California San Diego Medical Center (US)
- California Institute for Biomedical Research (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- BMC Cardiovascular Disorders
- Published
- 2025-11-12
- DOI
- https://doi.org/10.1186/s12872-025-05282-7
- Primary Topic
- Amyloidosis: Diagnosis, Treatment, Outcomes
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- American Heart Association
- Ionis Pharmaceuticals